Perazzo Joseph, Rodriguez Margaret, Currie Jackson, Salata Robert, Webel Allison R
1 Case Western Reserve University, Cleveland, OH, USA.
2 University of Cincinnati, OH, USA.
West J Nurs Res. 2019 Jan;41(1):78-95. doi: 10.1177/0193945917749481. Epub 2017 Dec 25.
Data repositories are a strategy in line with precision medicine and big data initiatives, and are an efficient way to maximize data utility and form collaborative research relationships. Nurse researchers are uniquely positioned to make a valuable contribution using this strategy. The purpose of this article is to present a review of the benefits and challenges associated with developing data repositories, and to describe the process we used to develop and maintain a data repository in HIV research. Systematic planning, data collection, synthesis, and data sharing have enabled us to conduct robust cross-sectional and longitudinal analyses with more than 200 people living with HIV. Our repository building has also led to collaboration and training, both in and out of our organization. We present a pragmatic and affordable way that nurse scientists can build and maintain a data repository, helping us continue to make to our understanding of health phenomena.
数据存储库是一种与精准医学和大数据计划相一致的策略，是最大化数据效用并形成合作研究关系的有效方式。护士研究人员在运用这一策略方面具有独特的优势，能够做出宝贵贡献。本文旨在综述与开发数据存储库相关的益处和挑战，并描述我们在HIV研究中开发和维护数据存储库所采用的过程。系统的规划、数据收集、综合分析以及数据共享，使我们能够对200多名HIV感染者进行有力的横断面和纵向分析。我们的数据存储库建设还促成了本组织内外的合作与培训。我们提出了一种务实且经济实惠的方法，护士科学家可以借此建立和维护数据存储库，有助于我们持续增进对健康现象的理解。
