Flannery Halina, Glew Sarah, Brewster Aylana, Christie Deborah
University College London Hospital, Child and Adolescent Psychological Services, 6th Floor, 250 Euston Road, NW1 2PG London, UK.
Healthcare (Basel). 2017 Dec 29;6(1):1. doi: 10.3390/healthcare6010001.
There are many widely used, validated patient reported outcome measures for physical and mental health. However, capturing outcomes from young people living with chronic health conditions presents a challenge, needing to take the complex interplay of physical and mental health into consideration. The authors found that regularly used outcome measures for child and adolescent emotional well-being in paediatric settings largely fall into two groups: paediatric quality of life and child and adolescent mental health measures. The applicability and potential for use of these measures within this context is discussed. Whilst offering some utility, neither approach leaves sufficient space for young people's individual experiences of illness and treatment. The scope of using alternative qualitative approaches that capture the rich stories and experiences of young people living with chronic illnesses is considered.
有许多广泛使用且经过验证的患者报告的身心健康结局指标。然而，获取患有慢性健康状况的年轻人的结局指标是一项挑战，需要考虑身心健康的复杂相互作用。作者发现，儿科环境中常用的儿童和青少年情绪健康结局指标主要分为两类：儿科生活质量指标以及儿童和青少年心理健康指标。本文讨论了这些指标在此背景下的适用性和使用潜力。虽然这些方法有一定作用，但都没有为年轻人疾病和治疗的个人经历留出足够空间。本文还考虑了使用替代定性方法的范围，这些方法可以捕捉患有慢性病的年轻人丰富的故事和经历。
