Child and Adolescent Psychology Team, Paediatric and Adolescent Division, University College London Hospitals NHS Foundation Trust, UK.
Child Outcomes Research Consortium, Anna Freud National Centre for Children and Families, University College London, UK.
Clin Child Psychol Psychiatry. 2020 Jul;25(3):594-603. doi: 10.1177/1359104520904120. Epub 2020 Feb 12.
There is a growing drive to develop and implement patient-reported outcome measures within paediatric health services, particularly for young people living with chronic health conditions; however, there is little consensus on how best to do this in meaningful ways within psychological services working alongside medical teams. This reflective commentary considers some of the challenges of collecting psychological outcome measures in paediatric services and considers alternative approaches to making outcome measurement meaningful. All measures have their limitations; however, they become meaningless if they are not used in meaningful and considered ways with young people. Client-defined outcome measurement, such as goal-based outcome measures, alongside other types of measurement, can capture outcomes of meaning to young people living with chronic health conditions, and can enable them to feed into a shared decision-making process.
越来越多的人希望在儿科医疗服务中开发和实施患者报告的结果测量，尤其是针对患有慢性疾病的年轻人；然而，在与医疗团队合作的心理服务中，以有意义的方式做到这一点还没有达成共识。这篇反思性评论探讨了在儿科服务中收集心理结果测量时面临的一些挑战，并考虑了使结果测量有意义的替代方法。所有的措施都有其局限性；然而，如果不以有意义和深思熟虑的方式与年轻人一起使用，它们就变得毫无意义。以目标为基础的结果测量等由客户定义的结果测量，以及其他类型的测量，可以捕捉到患有慢性疾病的年轻人有意义的结果，并使他们能够参与共同决策过程。
