Hellings Peter W, Borrelli David, Pietikainen Sirpa, Agache Ioana, Akdis Cezmi, Bachert Claus, Bewick Michael, Botjes Erna, Constantinidis Jannis, Fokkens Wytske, Haahtela Tari, Hopkins Claire, Illario Maddalena, Joos Guy, Lund Valerie, Muraro Antonella, Pugin Benoit, Seys Sven, Somekh David, Stjärne Pär, Valiulis Arunas, Valovirta Erkka, Bousquet Jean
Department of Otorhinolaryngology, University Hospitals Leuven, KU Leuven, Louvain, Belgium.
Department of Otorhinolaryngology, Academic Medical Center, Amsterdam, The Netherlands.
Clin Transl Allergy. 2017 Dec 27;7:49. doi: 10.1186/s13601-017-0186-3. eCollection 2017.
On March 29, 2017, a European Summit on the Prevention and Self-Management of Chronic Respiratory Diseases (CRD) was organized by the European Forum for Research and Education in Allergy and Airway Diseases. The event took place in the European Parliament of Brussels and was hosted by MEP David Borrelli and MEP Sirpa Pietikainen. The aim of the Summit was to correspond to the needs of the European Commission and of patients suffering from CRD to join forces in Europe for the prevention and self-management. Delegates of the European Rhinologic Society, European Respiratory Society, European Academy of Allergy and Clinical Immunology, European Academy of Paediatrics, and European Patients Organization EFA all lectured on their vision and action plan to join forces in achieving adequate prevention and self-management of CRD in the context of Precision Medicine. Recent data highlight the preventive capacity of education on optimal care pathways for CRD. Self-management and patient empowerment can be achieved by novel educational on-line materials and by novel mobile health tools enabling patients and doctors to monitor and optimally treat CRDs based on the level of control. This report summarizes the contributions of the representatives of different European academic stakeholders in the field of CRD.
2017年3月29日,变应性疾病与气道疾病研究和教育欧洲论坛组织了一场慢性呼吸道疾病(CRD)预防与自我管理欧洲峰会。该活动在布鲁塞尔的欧洲议会举行,由欧洲议会议员大卫·博雷利和欧洲议会议员西尔帕·皮埃蒂凯宁主持。峰会的目的是响应欧盟委员会以及CRD患者的需求,在欧洲共同努力进行预防和自我管理。欧洲鼻科学会、欧洲呼吸学会、欧洲变态反应和临床免疫学会、欧洲儿科学会以及欧洲患者组织EFA的代表均就他们在精准医学背景下共同努力实现CRD充分预防和自我管理的愿景及行动计划发表了演讲。最新数据凸显了关于CRD最佳照护路径教育的预防能力。自我管理和患者赋权可通过新颖的在线教育材料以及新颖的移动健康工具来实现,这些工具能让患者和医生根据控制水平监测并优化治疗CRD。本报告总结了欧洲不同学术利益相关方代表在CRD领域的贡献。