Department of Psychiatry, Radboud University Medical Center, Nijmegen, Reinier Postlaan 4, 6525 EX, Nijmegen, The Netherlands.
, Arnhem, The Netherlands.
J Autism Dev Disord. 2018 Jun;48(6):1920-1931. doi: 10.1007/s10803-017-3445-1.
Primary caregivers experience consequences from being in close contact to a person with autism spectrum disorder (ASD). This study used the Involvement Evaluation Questionnaire to explore the level of consequences of 104 caregivers involved with adults with High Functioning ASD (HF-ASD) and compared these with the consequences reported by caregivers of patients suffering from depression and schizophrenia. Caregivers involved with adults with an HF-ASD experience overall consequences comparable to those involved with patients with depression or schizophrenia. Worrying was the most reported consequence. More tension was experienced by the caregivers of ASD patients, especially by spouses. More care and attention for spouses of adults with an HF-ASD appears to be needed.
主要照顾者与自闭症谱系障碍(ASD)患者密切接触会带来后果。本研究使用参与评估问卷,调查了 104 名照顾者照顾高功能自闭症(HF-ASD)成年患者的后果程度,并将其与照顾抑郁症和精神分裂症患者的照顾者报告的后果进行了比较。照顾 HF-ASD 成年患者的照顾者总体上经历的后果与照顾抑郁症或精神分裂症患者的照顾者相当。担忧是最常报告的后果。自闭症患者的照顾者体验到更多的紧张,尤其是配偶。需要给予 HF-ASD 成年患者的配偶更多的关心和关注。