Department of Education Studies, University of California San Diego, 9500 Gilman Drive #0070, La Jolla, CA, 92093, USA.
J Autism Dev Disord. 2018 Jun;48(6):1995-2009. doi: 10.1007/s10803-017-3457-x.
This study examined cultural beliefs about ASD and its causes among Mexican-heritage families. In focus group interviews, we asked 25 immigrant parents of children with ASD to identify words they associated with ASD and its causes. Participants free-listed, ranked, and justified their responses. Mixed methods analyses utilized saliency scores to calculate responses. Deductive interview analyses justified participants' responses. Salient responses for ASD perceptions included specific characteristics about the child (e.g., loving) and perceptions about lack of resources. Salient responses for ASD causes were vaccines, genetics, and a combination of genetics and environment. Inductive analyses revealed distinct beliefs about social stigma, child characteristics, factors supporting development, and parents' emotional stress. Interpretations linked these beliefs to promising adaptations in diagnosis and treatment.
本研究考察了墨西哥裔美国家庭对自闭症谱系障碍及其成因的文化观念。在焦点小组访谈中，我们邀请了 25 名自闭症儿童的移民父母，让他们说出与自闭症谱系障碍及其成因相关的词汇。参与者自由列举、排序并为他们的回答提供依据。混合方法分析利用显著分数来计算反应。演绎式访谈分析为参与者的回答提供了依据。关于自闭症谱系障碍看法的显著反应包括孩子的具体特征（例如，有爱心）和对资源匮乏的看法。自闭症谱系障碍成因的显著反应包括疫苗、遗传因素以及遗传和环境的综合作用。归纳分析揭示了关于社会污名、儿童特征、支持发展的因素以及父母情绪压力的不同信念。这些解释将这些信念与诊断和治疗方面的有希望的调整联系起来。
