Duggan Colette, Wilson Catherine, DiPonio Lisa, Trumpower Brad, Meade Michelle A
Rehabilitation Institute of Michigan, Detroit, Michigan.
James A. Haley Veterans Hospital, Tampa, Florida.
Top Spinal Cord Inj Rehabil. 2016 Spring;22(2):99-110. doi: 10.1310/sci2202-99.
The purpose of this study was to identify factors associated with resilience among individuals with spinal cord injury (SCI). Qualitative analyses were conducted of the written comments that were completed as part of a cross-sectional survey of individuals with SCI living in the community. More than 1,800 mail surveys were distributed to individuals identified as having a traumatic SCI through the records and/or membership lists of 4 organizations. Four hundred and seventy-five individuals completed and returned the survey, with approximately half (48.6%; = 231) of respondents answering the open-ended question "Is there anything else you would like to tell us about your resilience or ability to 'bounce back' when you face a challenge?" Analyses of these responses identified both specific resources and cognitive perspectives that are associated with perceived happiness. Responses fell within 8 general categories: resilience, general outlook on life, social support and social relationships, religion or faith in a higher power, mood, physical health and functioning (including pain), social comparisons, and resources. Nuanced themes within these categories were identified and were generally concordant with self-reported level of happiness. A majority of respondents with SCI identified themselves as happy and explained their adjustment and resilience as related to personality, good social support, and a spiritual connection. In contrast, pain and physical challenges appeared to be associated with limited ability to bounce back.
本研究的目的是确定脊髓损伤（SCI）患者中与恢复力相关的因素。对作为社区中脊髓损伤患者横断面调查一部分所完成的书面评论进行了定性分析。通过4个组织的记录和/或成员名单，向被确定患有创伤性脊髓损伤的个人发放了1800多份邮件调查问卷。475人完成并返回了调查问卷，约一半（48.6%；n = 231）的受访者回答了开放式问题：“当你面对挑战时，关于你的恢复力或‘恢复能力’，你还有其他想告诉我们的吗？”对这些回答的分析确定了与感知幸福相关的特定资源和认知观点。回答分为8个大致类别：恢复力、总体生活观、社会支持和社会关系、宗教或对更高力量的信仰、情绪、身体健康和功能（包括疼痛）、社会比较和资源。确定了这些类别中的细微主题，且这些主题总体上与自我报告的幸福水平一致。大多数脊髓损伤患者将自己视为幸福的，并将他们的适应和恢复力解释为与个性、良好的社会支持和精神联系有关。相比之下，疼痛和身体挑战似乎与恢复能力有限有关。
