Merghati-Khoei Effat, Maasoumi Raziyeh, Zarei Fatemeh, Laleh Leila, Pasha Yousofreza Yousofnia, Korte Jeffrey E, Khazaeipour Zahra
Brain and Spinal Cord Injury Research Center, Neuroscience Institute, Tehran University of Medical Sciences, Tehran, Iran.
Iranian National Center for Addiction Studies, Institution for Risk Behaviors Reduction, Tehran University of Medical Sciences, Tehran, Iran.
Top Spinal Cord Inj Rehabil. 2017 Winter;23(1):71-77. doi: 10.1310/sci2301-71.
Spinal cord injury (SCI) is a life-altering experience. There is little information about the perspectives of people with SCI toward marriage. To explore the understandings of Iranian adults with SCI about marriage. In this qualitative inquiry, using a semi-structured interview guide, we collected data from 53 single adults with SCI (41 men and 12 women) who were referred to the Brain and Spinal Cord Injury Research Center, Tehran University of Medical Sciences in Tehran. Barun and Clarke's thematic analysis approach was applied for data analysis. "Marriage" was thematized in outer and inner scenarios. The outer scenario was explored in terms of physical disability identified as a seminal determinant in successful marriage. "Attractiveness," "able body for breadwinning," "sexually active," and "reproduction" were dominant concepts extracted from the participants' narratives. The participants' inner scenarios revealed that marriage would be welcomed if a potential partner accepted them as a "whole person" regardless of their SCI condition. The findings suggest that adults with SCI do not ignore or reject marriage, however it was not their life priority due to major concerns that they had internalized. Considering the quality of care, people with SCI must be reassured about their potential to get married. SCI-based sexuality education and premarital counseling support the patients in their postmarital lives. Our findings will provide decision makers and health providers with significant insight for utilizing culturally appropriate services for people with SCI.
脊髓损伤（SCI）是一种改变人生的经历。关于脊髓损伤患者对婚姻的看法，相关信息甚少。为了探究伊朗成年脊髓损伤患者对婚姻的理解。在这项定性研究中，我们使用半结构化访谈指南，从53名单身脊髓损伤成年人（41名男性和12名女性）中收集数据，这些患者均被转诊至德黑兰医科大学脑与脊髓损伤研究中心。数据分析采用了巴伦和克拉克的主题分析方法。“婚姻”在外部和内部情境中被主题化。外部情境从身体残疾方面进行探讨，身体残疾被视为成功婚姻的一个关键决定因素。“吸引力”“有挣钱养家的健全身体”“性活跃”和“生育能力”是从参与者叙述中提取的主要概念。参与者的内部情境表明，如果潜在伴侣能接受他们作为“完整的人”，而不论其脊髓损伤状况如何，他们会欢迎婚姻。研究结果表明，脊髓损伤成年人并非忽视或拒绝婚姻，然而由于他们内心存在的主要担忧，婚姻并非他们生活的首要优先事项。考虑到护理质量，必须让脊髓损伤患者相信他们有结婚的可能性。基于脊髓损伤的性教育和婚前咨询有助于患者的婚后生活。我们的研究结果将为决策者和医疗服务提供者提供重要见解，以便为脊髓损伤患者提供符合文化背景的适当服务。
