Khazaeipour Zahra, Nikbakht-Nasrabadi Alireza, Mohammadi Nooredin, Salehi-Nejad Alireza, Shabany Maryam
Brain and Spinal Cord Injury Research Center, Neuroscience Institute, Tehran University of Medical Sciences, Tehran, Iran.
Department of Medical Surgical Nursing and Deputy Dean for International Affairs, Nursing and Midwifery School, Tehran University of Medical Sciences, Tehran, Iran.
Spinal Cord. 2018 Dec;56(12):1184-1193. doi: 10.1038/s41393-018-0162-3. Epub 2018 Jun 14.
This was a qualitative study conducted using an interpretative phenomenological approach.
This study investigated the experience of pregnancy and childbirth in women with spinal cord injury (SCI).
Brain and Spinal Cord Injury Research Center, Tehran University of Medical Sciences, Tehran, Iran.
The data were collected using telecommunication and face-to-face semi-structured interviews with eight women with SCI. The study employed the interpretative phenomenological approach suggested by Van Manen in 2016 and thematic analysis to provide a comprehensive understanding of the childbearing experience of women with SCI. MAXQDA 10 software was used to manage the collected data.
Five main themes have emerged from data analysis: "revivification", "fear and concern of motherhood with SCI", "flawed health care system", "maternal experience under a supportive umbrella", and "strengthening spirituality and religious belief".
Childbearing had a positive effect on the family relationship, continuity of marriage, and quality of life following SCI. There are potential benefits in establishing a center that provides consultation on childbearing and childcare for women with SCI. Moreover, training for the medical team, which includes nurses, midwives, and specialists is highly recommended. Further research is needed to expand our understanding of childbearing from the perspectives of healthcare providers.
这是一项采用解释现象学方法进行的定性研究。
本研究调查了脊髓损伤（SCI）女性的怀孕和分娩经历。
伊朗德黑兰医科大学脑与脊髓损伤研究中心。
通过电话和面对面半结构化访谈收集了8名脊髓损伤女性的数据。该研究采用了范曼恩在2016年提出的解释现象学方法和主题分析，以全面了解脊髓损伤女性的生育经历。使用MAXQDA 10软件管理收集到的数据。
数据分析得出了五个主要主题：“复苏”、“脊髓损伤母亲对母性的恐惧和担忧”、“有缺陷的医疗保健系统”、“在支持下的母亲经历”以及“增强灵性和宗教信仰”。
生育对脊髓损伤后的家庭关系、婚姻连续性和生活质量有积极影响。为脊髓损伤女性建立一个提供生育和育儿咨询的中心有潜在益处。此外，强烈建议对包括护士、助产士和专家在内的医疗团队进行培训。需要进一步研究以从医疗保健提供者的角度扩大我们对生育的理解。
