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本文引用的文献

1
Coping Strategies Used by Breast, Prostate, and Colorectal Cancer Survivors: A Literature Review.应对策略用于乳腺癌、前列腺癌和结直肠癌幸存者:文献综述。
Cancer Nurs. 2018 Sep/Oct;41(5):E23-E39. doi: 10.1097/NCC.0000000000000528.
2
Follow-up cancer care: perspectives of Aboriginal and Torres Strait Islander cancer survivors.癌症后续护理:原住民和托雷斯海峡岛民癌症幸存者的观点
Support Care Cancer. 2017 May;25(5):1597-1605. doi: 10.1007/s00520-016-3563-x. Epub 2017 Jan 12.
3
Unmet supportive care needs of Australian Aboriginal and Torres Strait Islanders with cancer: a prospective, longitudinal study.澳大利亚原住民和托雷斯海峡岛民癌症患者未满足的支持性护理需求:一项前瞻性纵向研究。
Support Care Cancer. 2017 Mar;25(3):869-877. doi: 10.1007/s00520-016-3475-9. Epub 2016 Nov 10.
4
Coping response following a diagnosis of breast cancer: A systematic review.乳腺癌诊断后的应对反应:一项系统综述。
Electron Physician. 2015 Dec 20;7(8):1575-83. doi: 10.19082/1575. eCollection 2015 Dec.
5
Are Aboriginal people more likely to be diagnosed with more advanced cancer?原住民被诊断出患有更晚期癌症的可能性更高吗?
Med J Aust. 2015 Mar 2;202(4):195-9. doi: 10.5694/mja14.00701.
6
Why closing the Aboriginal health gap is so elusive.为何缩小原住民健康差距如此难以实现。
Intern Med J. 2014 Nov;44(11):1141-3. doi: 10.1111/imj.12577.
7
Survival disparities in Australia: an analysis of patterns of care and comorbidities among indigenous and non-indigenous cancer patients.澳大利亚的生存差异:对原住民和非原住民癌症患者的护理模式及合并症的分析。
BMC Cancer. 2014 Jul 18;14:517. doi: 10.1186/1471-2407-14-517.
8
Priority setting in Indigenous health: assessing priority setting process and criteria that should guide the health system to improve Indigenous Australian health.原住民健康中的优先事项设定:评估应指导卫生系统改善澳大利亚原住民健康的优先事项设定过程和标准。
Int J Equity Health. 2014 Jun 7;13:45. doi: 10.1186/1475-9276-13-45.
9
The influence of the patient-clinician relationship on healthcare outcomes: a systematic review and meta-analysis of randomized controlled trials.患者与临床医生关系对医疗结果的影响:随机对照试验的系统评价与荟萃分析
PLoS One. 2014 Apr 9;9(4):e94207. doi: 10.1371/journal.pone.0094207. eCollection 2014.
10
Survivorship: introduction and definition. Clinical practice guidelines in oncology.生存:引言和定义。肿瘤临床实践指南。
J Natl Compr Canc Netw. 2014 Jan;12(1):34-45. doi: 10.6004/jnccn.2014.0005.

探索澳大利亚原住民癌症患者的积极生存体验。

Exploring Positive Survivorship Experiences of Indigenous Australian Cancer Patients.

机构信息

School of Medicine, The University of Queensland, Herston, QLD 4006, Australia.

Menzies School of Health Research, Charles Darwin University, Darwin, NT 0811, Australia.

出版信息

Int J Environ Res Public Health. 2018 Jan 15;15(1):135. doi: 10.3390/ijerph15010135.

DOI:10.3390/ijerph15010135
PMID:29342934
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5800234/
Abstract

Amongst Indigenous Australians, "cancer" has negative connotations that detrimentally impact upon access to cancer care services. Barriers to accessing cancer services amongst Indigenous Australians are widely reported. In contrast, factors that facilitate this cohort to successfully navigate cancer care services ("enablers") are scarcely reported in the literature. Through qualitative interviews, this article examines factors that assist Indigenous Australians to have positive cancer experiences. Semi-structured interviews were conducted with twelve adult Indigenous oncology patients recruited from a tertiary hospital in Queensland, Australia during 2012-2014. Data generated from the interviews were independently reviewed by two researchers via inductive thematic analytical processes. Discussions followed by consensus on the major categories allowed conclusions to be drawn on potential enablers. Two major categories of enablers were identified by the researchers: resilience and communication. Individual's intrinsic strength, their coping strategies, and receipt of support improved participant's resilience and consequently supported a positive experience. Communication methods and an effective patient-provider relationship facilitated positive experiences for participants. Despite potential barriers to access of care for Indigenous cancer patients, participants in the study demonstrated that it was still possible to focus on the positive aspects of their cancer experiences. Many participants explained how cancer changed their outlook on life, often for the better, with many feeling empowered as they progressed through their cancer diagnosis and treatment processes.

摘要

在澳大利亚原住民中,“癌症”一词带有负面含义,这对他们获得癌症护理服务产生了不利影响。原住民获得癌症服务的障碍已得到广泛报道。相比之下,在文献中很少有报道能促进这一群体成功获得癌症护理服务的因素(“促进因素”)。本文通过定性访谈,研究了有助于澳大利亚原住民获得积极癌症体验的因素。2012 年至 2014 年期间,在澳大利亚昆士兰州的一家三级医院,对 12 名成年原住民肿瘤患者进行了半结构化访谈。由两名研究人员通过归纳主题分析过程对访谈中生成的数据进行了独立审查。通过协商对主要类别达成一致意见,从而得出对潜在促进因素的结论。研究人员确定了两个主要的促进因素:韧性和沟通。个人的内在力量、他们的应对策略以及获得的支持提高了参与者的韧性,从而支持了积极的体验。沟通方式和有效的医患关系为参与者提供了积极的体验。尽管原住民癌症患者获得护理存在潜在障碍,但研究参与者表明,仍然有可能关注他们癌症经历的积极方面。许多参与者解释说,癌症如何改变了他们的人生观,通常是变得更好,许多人在癌症诊断和治疗过程中感到更有力量。