School of Medicine, The University of Queensland, Herston, QLD 4006, Australia.
Menzies School of Health Research, Charles Darwin University, Darwin, NT 0811, Australia.
Int J Environ Res Public Health. 2018 Jan 15;15(1):135. doi: 10.3390/ijerph15010135.
Amongst Indigenous Australians, "cancer" has negative connotations that detrimentally impact upon access to cancer care services. Barriers to accessing cancer services amongst Indigenous Australians are widely reported. In contrast, factors that facilitate this cohort to successfully navigate cancer care services ("enablers") are scarcely reported in the literature. Through qualitative interviews, this article examines factors that assist Indigenous Australians to have positive cancer experiences. Semi-structured interviews were conducted with twelve adult Indigenous oncology patients recruited from a tertiary hospital in Queensland, Australia during 2012-2014. Data generated from the interviews were independently reviewed by two researchers via inductive thematic analytical processes. Discussions followed by consensus on the major categories allowed conclusions to be drawn on potential enablers. Two major categories of enablers were identified by the researchers: resilience and communication. Individual's intrinsic strength, their coping strategies, and receipt of support improved participant's resilience and consequently supported a positive experience. Communication methods and an effective patient-provider relationship facilitated positive experiences for participants. Despite potential barriers to access of care for Indigenous cancer patients, participants in the study demonstrated that it was still possible to focus on the positive aspects of their cancer experiences. Many participants explained how cancer changed their outlook on life, often for the better, with many feeling empowered as they progressed through their cancer diagnosis and treatment processes.
在澳大利亚原住民中,“癌症”一词带有负面含义,这对他们获得癌症护理服务产生了不利影响。原住民获得癌症服务的障碍已得到广泛报道。相比之下,在文献中很少有报道能促进这一群体成功获得癌症护理服务的因素(“促进因素”)。本文通过定性访谈,研究了有助于澳大利亚原住民获得积极癌症体验的因素。2012 年至 2014 年期间,在澳大利亚昆士兰州的一家三级医院,对 12 名成年原住民肿瘤患者进行了半结构化访谈。由两名研究人员通过归纳主题分析过程对访谈中生成的数据进行了独立审查。通过协商对主要类别达成一致意见,从而得出对潜在促进因素的结论。研究人员确定了两个主要的促进因素:韧性和沟通。个人的内在力量、他们的应对策略以及获得的支持提高了参与者的韧性,从而支持了积极的体验。沟通方式和有效的医患关系为参与者提供了积极的体验。尽管原住民癌症患者获得护理存在潜在障碍,但研究参与者表明,仍然有可能关注他们癌症经历的积极方面。许多参与者解释说,癌症如何改变了他们的人生观,通常是变得更好,许多人在癌症诊断和治疗过程中感到更有力量。