癌症患儿父母的韧性、困扰和创伤后成长特征及其与后续育儿和家庭功能的关系。
Profiles of Resilience, Distress, and Posttraumatic Growth in Parents of Children with Cancer and the Relation to Subsequent Parenting and Family Functioning.
机构信息
Department of Psychology, St. Jude Children's Research Hospital, USA.
Department of Psychology, The University of Memphis, USA.
出版信息
J Pediatr Psychol. 2023 Apr 20;48(4):375-385. doi: 10.1093/jpepsy/jsac097.
OBJECTIVE
The aim of this study was to identify patterns of distress and growth in parents of children with cancer and examine associations with subsequent parenting, parent-child relationship, and family environment.
METHODS
Participants included children with cancer history (8-17 years) stratified by time since diagnosis and their parent. At enrollment, parents (n = 254) reported depression and anxiety, and post-traumatic stress symptoms, posttraumatic growth (PTG), and benefit finding in relation to their child's cancer. Three years later, children (n = 214) reported parenting behavior, parent reactions to their distress, and family environment. Parents reported their reaction to children's distress and qualities of the parent-child relationship.
RESULTS
Latent profile analysis empirically identified 3 cross-sectional profiles using baseline data: "Resilience, High Growth" (50%), characterized by the lowest distress and the highest PTG/benefit finding; "Moderate Distress with Growth" (33%), characterized by relatively high levels of all indicators; and "Resilience, Low Growth" (17%), characterized by relatively low distress with low PTG/benefit finding. Membership in profiles was associated with parent gender; parents' stressful life events; socioeconomic status; and child diagnosis, on versus off treatment status, and treatment intensity. Parent membership in the Moderate Distress with Growth profile was generally linked with poorer parenting behavior, parent-child relationship quality, and family functioning.
CONCLUSION
The majority of parents exhibited resilience and growth. However, a subset of parents displaying moderate distress may be at risk for subsequent parenting and family functioning challenges. Findings further highlight the importance of screening for even moderate parent distress and the possible impact of parent psychosocial interventions indirectly on parenting and family functioning.
目的
本研究旨在识别癌症患儿父母的困扰和成长模式，并探讨其与后续育儿、亲子关系和家庭环境的关联。
方法
研究对象包括按诊断后时间分层的癌症患儿及其父母。入组时，父母（n=254）报告了与孩子癌症相关的抑郁、焦虑和创伤后应激症状、创伤后成长（PTG）和获益发现。3 年后，儿童（n=214）报告了育儿行为、父母对其痛苦的反应以及家庭环境。父母报告了他们对孩子痛苦的反应和亲子关系的质量。
结果
使用基线数据进行潜在剖面分析，实证确定了 3 个横断面剖面：“Resilience, High Growth”（50%），特征为最低的困扰和最高的 PTG/获益发现；“Moderate Distress with Growth”（33%），特征为所有指标水平相对较高；以及“Resilience, Low Growth”（17%），特征为相对较低的困扰和低 PTG/获益发现。特征剖面的分类与父母性别、父母生活压力事件、社会经济地位以及儿童诊断、治疗中或治疗后状态和治疗强度有关。父母属于“Moderate Distress with Growth”剖面通常与较差的育儿行为、亲子关系质量和家庭功能有关。
结论
大多数父母表现出坚韧和成长。然而，表现出中等困扰的父母亚组可能面临后续育儿和家庭功能挑战的风险。研究结果进一步强调了对父母中度痛苦进行筛查的重要性，以及父母心理社会干预可能间接对育儿和家庭功能产生的影响。
Zotero 插件