Health Services and Information Management, East Carolina University, 600 Moye Blvd. Mail Stop 668, Greenville, NC, 27834, USA.
Department of Health Informatics and Administration, Social Media and Health Research and Training Lab, College of Health Sciences, University of Wisconsin - Milwaukee, Northwest Quadrant Building B, Rm #6410, 2025 East Newport Avenue, Milwaukee, WI, 53201-0413, USA.
J Cancer Surviv. 2018 Jun;12(3):316-325. doi: 10.1007/s11764-017-0670-8. Epub 2018 Jan 25.
The specific objective of this research is to design and develop a personalized Web application to support breast cancer survivors after treatment, as they deal with post-treatment challenges, such as comorbidities and side effects of treatment.
A mixed-methods approach, utilizing a combination of think-aloud analysis, personal interviews, and surveys, was adopted for user acceptance and usability testing among a group of breast cancer survivors. User feedback was gathered on their perceived value of the application, and any user-interface issues that may hinder the overall usability were identified.
The application's portability and capability of organizing their entire breast cancer-related medical history as well as tracking various quality of life indicators were perceived to be valuable features. The application had an overall high usability; however, certain sections of the application were not as intuitive to locate. Visual elements of the website were appreciated; however, overall experience would benefit from incorporating more sociable elements that exhibit positive re-enforcement within the end user and provide a friendlier experience.
The results of the study showcase the need for more personalized tools and resources to support survivors in self-management. It also demonstrates the ability to integrate breast cancer survivorship care plans from diverse providers and paves the way to add further value-added features in consumer health applications, such as personal decision support.
Using a personal decision support-based tool can serve as a training tool and resource, providing these patients with pertinent information about the various aspects of their long-term health, while educating them about any related side effects and symptoms. It is hoped that making such tools more accessible could help in engaging survivors to play an active role in managing their health and encourage shared decision-making with their providers.
本研究的具体目标是设计和开发一个个性化的网络应用程序,以支持治疗后的乳腺癌幸存者,因为他们要应对治疗后的挑战,如合并症和治疗副作用。
采用混合方法,对一组乳腺癌幸存者进行用户接受度和可用性测试,包括出声思维分析、个人访谈和调查。收集了用户对应用程序的感知价值的反馈,以及可能影响整体可用性的任何用户界面问题。
应用程序的便携性和组织他们整个乳腺癌相关病史以及跟踪各种生活质量指标的能力被认为是有价值的功能。该应用程序的整体可用性较高;然而,应用程序的某些部分不太容易找到。网站的视觉元素受到赞赏;然而,整体体验将受益于纳入更多社交元素,在最终用户中展示积极的强化,并提供更友好的体验。
该研究的结果表明,需要更多个性化的工具和资源来支持幸存者进行自我管理。它还展示了整合来自不同提供者的乳腺癌生存者护理计划的能力,并为在消费者健康应用程序中添加更多增值功能(如个人决策支持)铺平了道路。
使用基于个人决策支持的工具可以作为一种培训工具和资源,为这些患者提供有关其长期健康各个方面的相关信息,同时教育他们有关任何相关的副作用和症状。希望使这些工具更容易获得,可以帮助幸存者积极参与管理他们的健康,并鼓励与他们的提供者共同决策。