Department of Nursing, Jiangsu Province Hospital of Chinese Medicine, Affiliated Hospital of Nanjing University of Chinese Medicine, Nanjing, Jiangsu, China.
School of Nursing, Nanjing University of Chinese Medicine, Nanjing, Jiangsu, China.
BMJ Open. 2024 Nov 18;14(11):e089213. doi: 10.1136/bmjopen-2024-089213.
For emerging adults with inflammatory bowel disease, future uncertainty is a critical issue during this pivotal stage of life, study and career development, as they encounter many unknown challenges and opportunities. However, to the best of our knowledge, only a few qualitative studies on how emerging adults with inflammatory bowel disease cope with these uncertainties exist. This study aimed to investigate uncertainties associated with the future of emerging adults with inflammatory bowel disease and explore coping strategies.
A qualitative semistructured interview study with a phenomenological approach. Face-to-face semistructured interviews were conducted, audio-recorded, transcribed verbatim and subsequently analysed using the Colaizzi seven-step analysis method.
A tertiary hospital in eastern China.
Participants (n=14) were emerging adults with inflammatory bowel disease recruited from a tertiary hospital in eastern China, using a purposeful sampling technique.
Fourteen patients completed the interviews. Four themes were identified: uncertainties in educational and vocational planning, social and interpersonal relationships, mental and emotional health and disease management. Moreover, the participants emphasised the significance of timely patient education postdiagnosis and ensuring consistent medical guidance after discharge to minimise uncertainty and alleviate confusion. They also hoped to manage the disease through traditional Chinese medicine.
This study provides valuable insights into the various challenges encountered by emerging adults with inflammatory bowel disease and the factors that may impact their experiences. Additionally, it suggests the need for healthcare providers to devise suitable support and intervention strategies to guide and establish stable management of the patients' uncertain futures.
ChiCTR2300071289.
对于炎症性肠病的年轻成年人来说，未来的不确定性是他们人生、学习和职业发展的关键阶段的一个关键问题，因为他们会遇到许多未知的挑战和机遇。然而，据我们所知，只有少数关于炎症性肠病的年轻成年人如何应对这些不确定性的定性研究。本研究旨在探讨炎症性肠病年轻成年人未来相关的不确定性，并探讨应对策略。
采用现象学方法的定性半结构式访谈研究。进行面对面的半结构式访谈，录音，逐字转录，然后使用 Colaizzi 七步分析法进行分析。
中国东部的一家三级医院。
采用目的抽样技术，从中国东部的一家三级医院招募炎症性肠病的年轻成年人作为参与者。
14 名患者完成了访谈。确定了四个主题：教育和职业规划、社会和人际关系、心理和情绪健康以及疾病管理方面的不确定性。此外，参与者强调了及时进行诊断后患者教育和确保出院后持续医疗指导的重要性，以减少不确定性和减轻困惑。他们还希望通过中药来管理疾病。
本研究深入了解了炎症性肠病年轻成年人所面临的各种挑战以及可能影响他们体验的因素。此外，它还表明医疗保健提供者需要制定合适的支持和干预策略，以指导和建立患者不确定未来的稳定管理。
ChiCTR2300071289。
