银屑病患者的心理社会困扰：护理需求评估与支持性干预措施制定方案
Psychosocial Distress of Patients with Psoriasis: Protocol for an Assessment of Care Needs and the Development of a Supportive Intervention.
作者信息
Zill Jördis Maria, Dirmaier Jörg, Augustin Matthias, Dwinger Sarah, Christalle Eva, Härter Martin, Mrowietz Ulrich
机构信息
Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Institute of Health Care Research in Dermatology and Nursing, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
出版信息
JMIR Res Protoc. 2018 Feb 7;7(2):e22. doi: 10.2196/resprot.8490.
BACKGROUND
Psoriasis is a chronic inflammatory disease that is often associated with a number of somatic and mental comorbidity. Patients with psoriasis show an increased risk of depression and (social) anxiety.
OBJECTIVE
The aims of this study are 1) to explore the psychosocial distress of patients with psoriasis and to assess their care needs; and 2) to develop a supportive intervention based on the prior results.
METHODS
A multi-stage design with four phases combining quantitative and qualitative methodology will be used and conducted in two centers. 1) A scoping review and focus groups will be used to design a questionnaire to assess the psychosocial distress and care needs of the patients. 2) The questionnaire developed in phase 1 will be used in a cross-sectional survey to assess the extent of psychosocial distress and supportive care needs in 400 patients with psoriasis. 3) A systematic review and meta-analysis will be conducted to identify psychosocial and psychoeducational interventions for patients with psoriasis and to describe their effectiveness. 4) Based on the results of the phases 2 and 3 a manualized supportive intervention will be developed and the feasibility and acceptance of the intervention will be assessed.
RESULTS
Currently, phase 1 of the project has been completed and the recruitment for phase 2 has been started. The systematic review and meta-analysis of phase 3 are conducted simultaneously to phase 2 and results are expected soon. Phase 4 has not been started yet.
CONCLUSIONS
The expected results of this study will show the extent of psychosocial distress of patients with psoriasis in Germany and supplement previous research with findings about the supportive care needs of this patient group. Moreover, the developed intervention will help to address the psychosocial support needs of patients with psoriasis. Research shows that psychosocial support is strongly needed.
背景
银屑病是一种慢性炎症性疾病，常与多种躯体和精神共病相关。银屑病患者出现抑郁和（社交）焦虑的风险增加。
目的
本研究的目的是：1）探讨银屑病患者的心理社会困扰并评估其护理需求；2）根据先前结果制定一种支持性干预措施。
方法
将采用多阶段设计，分四个阶段，结合定量和定性方法，在两个中心进行。1）进行范围综述和焦点小组讨论，以设计一份问卷，评估患者的心理社会困扰和护理需求。2）将第1阶段制定的问卷用于横断面调查，以评估400例银屑病患者的心理社会困扰程度和支持性护理需求。3）进行系统综述和荟萃分析，以确定针对银屑病患者的心理社会和心理教育干预措施，并描述其有效性。4）根据第2阶段和第3阶段的结果，制定一份标准化的支持性干预措施，并评估该干预措施的可行性和可接受性。
结果
目前，该项目的第1阶段已完成，第2阶段的招募工作已开始。第3阶段的系统综述和荟萃分析与第2阶段同时进行，预计很快会有结果。第4阶段尚未开始。
结论
本研究的预期结果将显示德国银屑病患者心理社会困扰的程度，并补充此前关于该患者群体支持性护理需求的研究。此外，所制定的干预措施将有助于满足银屑病患者的心理社会支持需求。研究表明，心理社会支持非常必要。
Zotero 插件