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疾病严重程度对银屑病患者生活质量和耻辱感的影响。

Effect of Disease Severity on the Quality of Life and Sense of Stigmatization in Psoriatics.

作者信息

Kowalewska Beata, Jankowiak Barbara, Cybulski Mateusz, Krajewska-Kułak Elżbieta, Khvorik Dzmitry Fiodaravich

机构信息

Department of Integrated Medical Care, Medical University of Bialystok, Bialystok, Poland.

Department of Dermatovenerology, Medical University in Grodno, Grodno, Belarus.

出版信息

Clin Cosmet Investig Dermatol. 2021 Feb 2;14:107-121. doi: 10.2147/CCID.S286312. eCollection 2021.

Abstract

INTRODUCTION

Psoriasis is a chronic inflammatory disease of the skin having a profound effect on the quality of life and contributing to the sense of stigmatization in the affected patients. The aim of this study was to analyze the effect of psoriasis severity on the quality of life and sense of stigmatization in psoriatics and to investigate relationships between these measures and sociodemographic variables.

PATIENTS AND METHODS

The study included 111 patients with psoriasis. The inclusion criteria of the study were the diagnosis of psoriasis and written informed consent to participate. The study was based on a short survey prepared by the authors and four validated scales: Dermatology Life Quality Index (DLQI), 6-item Stigmatization Scale, 33-item Feelings of Stigmatization Questionnaire, and Psoriasis Area and Severity Index (PASI).

RESULTS

Mean PASI score for the study group was 14 pts. Most respondents presented with low DLQI scores, with the mean value of 10.8 pts suggesting that the disease-related ailments were not extremely burdensome for the majority of the patients. Mean stigmatization scores for the 6- and 33-item scale were 7-8 and 81-82 pts, respectively.

CONCLUSION

The severity of psoriasis was the strongest determinant of the quality of life measured with the DLQI. Also, the levels of stigmatization determined with the 6- and 33-item scale correlated significantly with PASI scores.

摘要

引言

银屑病是一种慢性皮肤炎症性疾病,对生活质量有深远影响,并使患者产生耻辱感。本研究的目的是分析银屑病严重程度对银屑病患者生活质量和耻辱感的影响,并调查这些指标与社会人口统计学变量之间的关系。

患者与方法

该研究纳入了111例银屑病患者。研究的纳入标准为银屑病诊断及参与研究的书面知情同意书。该研究基于作者编制的简短调查问卷以及四个经过验证的量表:皮肤病生活质量指数(DLQI)、6项耻辱感量表、33项耻辱感感受问卷以及银屑病面积和严重程度指数(PASI)。

结果

研究组的平均PASI评分为14分。大多数受访者的DLQI得分较低,平均值为10.8分,这表明疾病相关的不适对大多数患者来说并非极其沉重。6项量表和33项量表的平均耻辱感得分分别为7 - 8分和81 - 82分。

结论

银屑病的严重程度是用DLQI衡量生活质量的最强决定因素。此外,6项量表和33项量表所确定的耻辱感水平与PASI得分显著相关。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a761/7866929/0a89b8868066/CCID-14-107-g0001.jpg

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