NIHR Greater Manchester Primary Care Patient Safety Translational Research Centre, The University of Manchester, Manchester, UK.
Health eResearch Centre, Farr Institute for Health Informatics Research, London, UK.
BMC Med Inform Decis Mak. 2018 Feb 12;18(1):11. doi: 10.1186/s12911-018-0589-7.
Patient portals are considered valuable instruments for self-management of long term conditions, however, there are concerns over how patients might interpret and act on the clinical information they access. We hypothesized that visual cues improve patients' abilities to correctly interpret laboratory test results presented through patient portals. We also assessed, by applying eye-tracking methods, the relationship between risk interpretation and visual search behaviour.
We conducted a controlled study with 20 kidney transplant patients. Participants viewed three different graphical presentations in each of low, medium, and high risk clinical scenarios composed of results for 28 laboratory tests. After viewing each clinical scenario, patients were asked how they would have acted in real life if the results were their own, as a proxy of their risk interpretation. They could choose between: 1) Calling their doctor immediately (high interpreted risk); 2) Trying to arrange an appointment within the next 4 weeks (medium interpreted risk); 3) Waiting for the next appointment in 3 months (low interpreted risk). For each presentation, we assessed accuracy of patients' risk interpretation, and employed eye tracking to assess and compare visual search behaviour.
Misinterpretation of risk was common, with 65% of participants underestimating the need for action across all presentations at least once. Participants found it particularly difficult to interpret medium risk clinical scenarios. Participants who consistently understood when action was needed showed a higher visual search efficiency, suggesting a better strategy to cope with information overload that helped them to focus on the laboratory tests most relevant to their condition.
This study confirms patients' difficulties in interpreting laboratories test results, with many patients underestimating the need for action, even when abnormal values were highlighted or grouped together. Our findings raise patient safety concerns and may limit the potential of patient portals to actively involve patients in their own healthcare.
患者门户被认为是管理长期疾病的有价值的工具,但是,人们对患者如何解释和处理他们所获取的临床信息存在担忧。我们假设视觉提示可以提高患者正确解释通过患者门户提供的实验室测试结果的能力。我们还通过应用眼动追踪方法评估了风险解释与视觉搜索行为之间的关系。
我们进行了一项有 20 名肾移植患者参与的对照研究。参与者在低、中、高风险临床情景中查看了三种不同的图形呈现,每个情景都由 28 项实验室测试的结果组成。在查看每个临床情景后,患者被要求如果结果是他们自己的,他们在现实生活中会如何行动,以此作为他们风险解释的代表。他们可以选择以下三种方式之一:1)立即打电话给他们的医生(高风险解读);2)尝试在接下来的 4 周内安排预约(中风险解读);3)等待 3 个月后的下次预约(低风险解读)。对于每种呈现方式,我们评估了患者风险解读的准确性,并使用眼动追踪来评估和比较视觉搜索行为。
风险解读错误很常见,65%的参与者在所有呈现方式中至少有一次低估了采取行动的必要性。参与者发现解读中风险临床情景特别困难。那些始终能够理解何时需要采取行动的参与者表现出更高的视觉搜索效率,这表明他们有更好的策略来应对信息过载,这有助于他们专注于与自己病情最相关的实验室测试。
这项研究证实了患者在解读实验室测试结果方面的困难,许多患者低估了采取行动的必要性,即使异常值被突出显示或分组在一起也是如此。我们的发现引起了患者安全方面的担忧,并可能限制患者门户主动参与患者自身医疗保健的潜力。