Bevan Jones Rhys, Thapar Anita, Rice Frances, Beeching Harriet, Cichosz Rachel, Mars Becky, Smith Daniel J, Merry Sally, Stallard Paul, Jones Ian, Thapar Ajay K, Simpson Sharon A
Division of Psychological Medicine and Clinical Neurosciences, Medical Research Council Centre for Neuropsychiatric Genetics and Genomics, Cardiff University, Cardiff, Wales, United Kingdom.
National Centre for Mental Health, Cardiff University, Cardiff, Wales, United Kingdom.
JMIR Ment Health. 2018 Feb 15;5(1):e13. doi: 10.2196/mental.8894.
Depression is common in adolescence and leads to distress and impairment in individuals, families and carers. Treatment and prevention guidelines highlight the key role of information and evidence-based psychosocial interventions not only for individuals but also for their families and carers. Engaging young people in prevention and early intervention programs is a challenge, and early treatment and prevention of adolescent depression is a major public health concern. There has been growing interest in psychoeducational interventions to provide accurate information about health issues and to enhance and develop self-management skills. However, for adolescents with, or at high risk of depression, there is a lack of engaging Web-based psychoeducation programs that have been developed with user input and in line with research guidelines and targeted at both the individual and their family or carer. There are also few studies published on the process of development of Web-based psychoeducational interventions.
The aim of this study was to describe the process underlying the design and development of MoodHwb (HwbHwyliau in Welsh): a Web-based psychoeducation multimedia program for young people with, or at high risk of, depression and their families, carers, friends, and professionals.
The initial prototype was informed by (1) a systematic review of psychoeducational interventions for adolescent depression; (2) findings from semistructured interviews and focus groups conducted with adolescents (with depressive symptoms or at high risk), parents or carers, and professionals working with young people; and (3) workshops and discussions with a multimedia company and experts (in clinical, research, and multimedia work). Twelve interviews were completed (four each with young people, parents or carers, and professionals) and six focus groups (three with young people, one with parents and carers, one with professionals, and one with academics).
Key themes from the interviews and focus groups were: aims of the program, design and content issues, and integration and context of the program. The prototype was designed to be person-centered, multiplatform, engaging, interactive, and bilingual. It included mood-monitoring and goal-setting components and was available as a Web-based program and an app for mobile technologies.
MoodHwb is a Web-based psychoeducational intervention developed for young people with, or at high risk of, depression and their families and carers. It was developed with user input using qualitative methods as well as user-centered design and educational and psychological theory. Further research is needed to evaluate the effectiveness of the program in a randomized controlled trial. If found to be effective, it could be implemented in health, education, youth and social services, and charities, to not only help young people but also families, carers, friends, and professionals involved in their care.
抑郁症在青少年中很常见,会给个人、家庭和照顾者带来痛苦和损害。治疗和预防指南强调了基于信息和证据的心理社会干预措施不仅对个人,而且对其家庭和照顾者的关键作用。让年轻人参与预防和早期干预项目是一项挑战,青少年抑郁症的早期治疗和预防是一个重大的公共卫生问题。人们对心理教育干预措施越来越感兴趣,这些措施旨在提供有关健康问题的准确信息,并增强和培养自我管理技能。然而,对于患有抑郁症或有抑郁症高风险的青少年来说,缺乏在用户参与下开发、符合研究指南且针对个人及其家庭或照顾者的有吸引力的基于网络的心理教育项目。关于基于网络的心理教育干预措施的开发过程的研究也很少。
本研究的目的是描述MoodHwb(威尔士语为HwbHwyliau)的设计和开发过程:这是一个针对患有抑郁症或有抑郁症高风险的年轻人及其家庭、照顾者、朋友和专业人员的基于网络的心理教育多媒体项目。
最初的原型基于以下几点:(1)对青少年抑郁症心理教育干预措施的系统评价;(2)对青少年(有抑郁症状或有高风险)、父母或照顾者以及与年轻人打交道的专业人员进行的半结构化访谈和焦点小组的结果;(3)与一家多媒体公司和专家(临床、研究和多媒体方面的专家)举办的研讨会和讨论。完成了12次访谈(分别对年轻人、父母或照顾者以及专业人员进行了4次访谈)和6个焦点小组(3个是年轻人小组,1个是父母和照顾者小组,1个是专业人员小组,1个是学术人员小组)。
访谈和焦点小组的关键主题包括:项目的目标、设计和内容问题以及项目的整合和背景。该原型被设计为以用户为中心、多平台、有吸引力、交互式和双语的。它包括情绪监测和目标设定组件,并以基于网络的项目和移动技术应用程序的形式提供。
MoodHwb是一个为患有抑郁症或有抑郁症高风险的年轻人及其家庭和照顾者开发的基于网络的心理教育干预措施。它是在用户参与下采用定性方法以及以用户为中心的设计、教育和心理学理论开发的。需要进一步的研究在随机对照试验中评估该项目的有效性。如果被证明是有效的,它可以在卫生、教育、青年和社会服务以及慈善机构中实施,不仅帮助年轻人,还帮助参与其护理的家庭、照顾者、朋友和专业人员。