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家庭如何应对慢性病:对常态化概念的分析

How families manage chronic conditions: an analysis of the concept of normalization.

作者信息

Knafl K A, Deatrick J A

出版信息

Res Nurs Health. 1986 Sep;9(3):215-22. doi: 10.1002/nur.4770090306.

Abstract

Concept analysis entails the systematic examination of the attributes or characteristics of a given concept for the purpose of clarifying the meaning of that concept. The term "normalization" appears frequently in reports of how families respond to the illness or disability of a member. While most authors agree that families who have an ill or disabled member attempt to normalize their family life, definitions and applications of the concept vary considerably across investigators. Following guidelines for concept analysis proposed by Chinn and Jacobs (1983), the origin and development of the concept normalization are traced and criteria are presented for distinguishing between normalization and other responses families make to a member's illness or disability. Three case examples are presented: a model (normalization) case, a contrary (disassociation) case, and a related (denial) case.

摘要

概念分析需要对特定概念的属性或特征进行系统考察,目的是阐明该概念的含义。“正常化”一词经常出现在关于家庭如何应对家庭成员患病或残疾情况的报告中。虽然大多数作者都认同,有患病或残疾成员的家庭会试图使他们的家庭生活正常化,但不同研究者对这一概念的定义和应用差异很大。按照钦和雅各布斯(1983年)提出的概念分析指南,追溯了正常化这一概念的起源和发展,并给出了区分正常化与家庭对成员患病或残疾所做出的其他反应的标准。文中呈现了三个案例:一个典型(正常化)案例、一个相反(解离)案例和一个相关(否认)案例。

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