Klinik für Innere Medizin II, Hämatologie und Onkologie, Universitätsklinikum Jena, Am Klinikum 1, 07747 Jena, Germany.
Klinik für Neurologie, Johann Wolfgang Goethe Universität, Schleusenweg 2-16, 60528 Frankfurt am Main, Germany.
Complement Ther Med. 2018 Feb;36:113-117. doi: 10.1016/j.ctim.2017.12.006. Epub 2017 Dec 13.
The use of complementary and alternative medicine (CAM) for chronic diseases such as multiple sclerosis (MS) is becoming an increasingly important issue for those affected. Especially in Germany there are only a few studies dealing with CAM, as yet. The aim of this study was to assess the prevalence, the methods used, the subjective benefits as well as physician/patient communication.
A structured questionnaire including demographic and disease-specific data, CAM use, perceived benefits as well as physician/patient communication was sent to real and web-based self-help groups for MS in Germany.
343 answers could be evaluated. 77.3% of the participants were females. The mean age was 45.0 ± 11.9 years and the duration of the disease was 12.0 ± 9.6 years. 81.9% said they were using CAM, nearly half (44.8%) used it alternatively to conventional medicine. The average number of CAM- methods used were 3.6. The most popular methods were vitamin supplements, Yoga/Thai chi/Qi Gong, relaxation techniques and meditation. Approximately half (139/49.5%) of CAM users disclosed this to their treating neurologist. Yet, 37,6% have doubts on the competence of the respective physician.
Patients with MS have a strong interest in CAM. Usage as alternative therapy is widespread and puts patients at risk of progress of the disease. As patient/physician communication on the topic is increasing, neurologists should be attentive to guiding their patients through safe complementary methods.
对于多发性硬化症(MS)等慢性病患者来说,使用补充和替代医学(CAM)正成为一个日益重要的问题。尤其是在德国,目前仅有少数研究涉及 CAM。本研究旨在评估其流行程度、使用方法、主观获益以及医患沟通情况。
我们向德国的 MS 真实和网络自助团体发送了一份包含人口统计学和疾病特异性数据、CAM 使用情况、感知获益以及医患沟通的结构化问卷。
共评估了 343 份答卷。77.3%的参与者为女性。平均年龄为 45.0±11.9 岁,病程为 12.0±9.6 年。81.9%的参与者表示正在使用 CAM,近一半(44.8%)人将其作为替代常规医学的疗法。平均使用 CAM 方法的数量为 3.6 种。最受欢迎的方法包括维生素补充剂、瑜伽/泰式气功/气功、放松技术和冥想。大约一半(139/49.5%)的 CAM 用户向其治疗神经科医生透露了这一情况。然而,37.6%的人对相应医生的能力表示怀疑。
MS 患者对 CAM 有浓厚的兴趣。作为替代疗法的使用率很高,这使患者面临疾病进展的风险。随着医患在该主题上的沟通增加,神经科医生应注意指导患者使用安全的补充方法。