Singh Sarah, Burns Katharina Kovacs, Rees Jennifer, Picklyk Deanna, Spence Jessica, Marlett Nancy
1 Alberta Health Services, Calgary, Alberta, Canada.
2 Alberta Health Services, Edmonton, Alberta, Canada.
Healthc Manage Forum. 2018 Mar;31(2):57-61. doi: 10.1177/0840470417747003.
Engaging patients and families in research and the design of quality improvement is an essential component of Patient and Family Centred Care (PFCC). Alberta Health Services (AHS) has been engaging patients and families to promote a cultural shift towards PFCC. The AHS trains patient and family advisors to share their experiences and encourages staff to work with advisors to co-design improvements in care. This article briefly describes the role and growth of patient and family advisors, advisory groups, and the participation of advisors in research initiatives through AHS' Strategic Clinical Networks. It also describes recent efforts to build AHS' patient and family engagement capacity by introducing standard patient engagement training, supporting the creation of the innovative Patient and Community Engagement Research internship program, and by developing tools to measure the impact of patient and advisors on AHS. And finally, this article provides key learnings for health leaders.
让患者及其家属参与研究和质量改进设计是患者及家庭为中心的护理（PFCC）的重要组成部分。艾伯塔省医疗服务局（AHS）一直致力于让患者及其家属参与其中，以推动向PFCC的文化转变。AHS培训患者及家属顾问以分享他们的经验，并鼓励工作人员与顾问合作共同设计护理改进方案。本文简要描述了患者及家属顾问、顾问小组的角色和发展，以及顾问通过AHS的战略临床网络参与研究倡议的情况。它还介绍了通过引入标准的患者参与培训、支持创新的患者与社区参与研究实习计划以及开发工具来衡量患者和顾问对AHS的影响等近期为增强AHS患者及家属参与能力所做的努力。最后，本文为卫生领域领导者提供了关键经验教训。
