McCarron Tamara L, Noseworthy Thomas, Moffat Karen, Wilkinson Gloria, Zelinsky Sandra, White Deborah, Hassay Derek, Lorenzetti Diane L, Marlett Nancy J
The Department Community Health Sciences, Calgary, Alberta, Canada.
O'Brien Institute for Public Health, Calgary, Alberta, Canada.
Health Expect. 2019 Aug;22(4):709-720. doi: 10.1111/hex.12942. Epub 2019 Aug 4.
Large-scale transformation depends on effective engagement of diverse stakeholders. With the evolution of the role of the 'patient partner' in health-care decision making, understanding the motivations of these individuals is essential to the success of engagement initiatives. This study reports on motivational factors associated with patient engagement in health care.
Patient co-investigators and a researcher co-designed and conducted this study. A survey was administered to patients and family members. Key informant interviews and previous research informed the development of the survey tool. The survey data were analysed using exploratory factor analysis to identify the underlying dimensions in the data. Cronbach's alpha was used to determine reliability.
A total of 1449 individuals participated in the survey. Of these, 543 completed and 427 partially completed the survey (67% complete rate). The mean age of the respondents was 54 years. The majority of participants were female, well-educated, retired, married and lived in an urban centre. Seven motivational factors explained 65% of the total variance. Analysis of internal consistency revealed acceptable reliability for all items. The seven motivations were as follows: Self-fulfillment, Improving Healthcare, Compensation, Influence, Learning New Things, Conditional and Perks.
The results of this research describe a sample of patient and family members currently engaged with health systems. We identified seven motivational factors underlying their engagement. A deeper knowledge of volunteer motivations will not only create meaningful engagement opportunities for patients, but also enable health organizations to gain from the experience of these individuals, thereby enhancing quality and sustainability of patient engagement programmes.
大规模变革取决于不同利益相关者的有效参与。随着“患者伙伴”在医疗保健决策中角色的演变，了解这些人的动机对于参与计划的成功至关重要。本研究报告了与患者参与医疗保健相关的动机因素。
患者共同研究者和一名研究人员共同设计并开展了这项研究。对患者和家庭成员进行了一项调查。关键 informant 访谈和先前的研究为调查工具的开发提供了信息。使用探索性因素分析对调查数据进行分析，以确定数据中的潜在维度。使用 Cronbach's alpha 来确定可靠性。
共有 1449 人参与了调查。其中，543 人完成了调查，427 人部分完成了调查（完成率为 67%）。受访者的平均年龄为 54 岁。大多数参与者为女性，受过良好教育，已退休，已婚且居住在城市中心。七个动机因素解释了总方差的 65%。内部一致性分析显示所有项目的可靠性均可接受。这七个动机如下：自我实现、改善医疗保健、补偿、影响、学习新事物、条件和福利。
本研究结果描述了当前参与卫生系统的患者和家庭成员样本。我们确定了他们参与背后的七个动机因素。更深入地了解志愿者动机不仅将为患者创造有意义的参与机会，还将使卫生组织从这些人的经验中受益，从而提高患者参与计划的质量和可持续性。
