Author Affiliations: School of Nursing, University of Pittsburgh, Pennsylvania (Ms Arida); Mount Sinai Health System, New York (Dr Bressler); Massachusetts General Hospital, Boston (Dr Hagan and Mss Moran and D'Arpino); University of Colorado Denver (Ms Carr).
Cancer Nurs. 2019 Jul/Aug;42(4):E54-E60. doi: 10.1097/NCC.0000000000000550.
Mothers with ovarian cancer are at risk of experiencing additional demands given their substantial symptom burden and accelerated disease progression.
This study describes the experience of mothers with ovarian cancer, elucidating the interaction between their roles as mothers and patients with cancer.
We conducted a secondary analysis of focus groups with women with advanced ovarian cancer. Using descriptive coding, we developed a coding framework based on emerging findings and group consensus. We then identified higher-order themes capturing the breadth of experiences described by mothers with ovarian cancer.
Eight of the 13 participants discussed motherhood. The mean age of participants was 48.38 (SD, 7.17) years. All women were white (9/9), most had some college education (6/9), and the majority were married (5/9). Mean time since diagnosis was 7.43 (SD, 4.69) months; more than half of women (5/9) were currently receiving treatment. Themes and exemplar quotes reflected participants' evolving self-identities from healthy mother to cancer patient to woman mothering with cancer. Subthemes related to how motherhood was impacted by symptoms, demands of treatment, and the need to gain acceptance of living with cancer.
The experience of motherhood impacts how women experience cancer and how they evolve as survivors. Similarly, cancer influences mothering.
Healthcare providers should understand and address the needs of mothers with ovarian cancer. This study adds to the limited literature in this area and offers insight into the unique needs faced by women mothering while facing advanced cancer.
由于患有卵巢癌的母亲症状负担重且疾病进展迅速，因此她们面临着更多的需求。
本研究描述了患有卵巢癌的母亲的经历，阐明了她们作为母亲和癌症患者的角色之间的相互作用。
我们对患有晚期卵巢癌的女性进行了焦点小组的二次分析。使用描述性编码，我们根据新出现的发现和小组共识制定了一个编码框架。然后，我们确定了捕捉到患有卵巢癌的母亲所描述的广泛经历的更高阶主题。
在 13 名参与者中，有 8 名讨论了母亲的角色。参与者的平均年龄为 48.38 岁（标准差，7.17 岁）。所有女性均为白人（9/9），大多数人受过一些大学教育（6/9），大多数已婚（5/9）。诊断后平均时间为 7.43 个月（标准差，4.69 个月）；超过一半的女性（5/9）正在接受治疗。主题和典型引述反映了参与者从健康母亲到癌症患者再到患有癌症的母亲的自我认同的演变。与症状、治疗需求以及获得接受癌症生存的需求相关的子主题影响了母亲的角色。
母亲的经历影响了女性对癌症的体验以及她们作为幸存者的发展。同样，癌症也影响了母亲的角色。
医疗保健提供者应该理解和满足患有卵巢癌的母亲的需求。本研究增加了该领域有限的文献，并深入了解了在面临晚期癌症时养育子女的女性所面临的独特需求。
