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父母在医院当患者,在家当家长的复杂性:一项关于癌症患儿父母养育问题和挑战的定性研究。

The Complexity of Being a Parent in the Hospital and a Patient at Home: A Qualitative Study on Parenting Concerns and Challenges Among Parents With Cancer.

机构信息

Author Affiliations: Department of Women's and Children's Health (Ms Romare Strandh, and Drs Hovén, Stålberg, Ljungman, and Wikman), Centre for Women's Mental Health during the Reproductive Lifespan (WOMHER) (Ms Romare Strandh and Dr Wikman), and Centre for Gender Research (Dr Sörensdotter), Uppsala University; and Department of Clinical Neuroscience, Karolinska Institutet (Dr Enebrink), Sweden.

出版信息

Cancer Nurs. 2025;48(1):E9-E17. doi: 10.1097/NCC.0000000000001276. Epub 2023 Sep 21.

DOI:10.1097/NCC.0000000000001276
PMID:37731179
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11610917/
Abstract

BACKGROUND

Parents given a diagnosis of cancer must balance the demands of their illness and caregiving responsibilities. This can result in parental stress and have a negative impact on the well-being of the whole family. A greater understanding of the experiences of parents with cancer is necessary to provide adequate support.

OBJECTIVE

The aim of this study was to explore parenting concerns and challenges among parents with cancer who were caring for dependent children younger than 18 years.

METHODS

Semistructured interviews were carried out with 22 parents with cancer. Interviews were audio-recorded, transcribed, and analyzed using thematic analysis.

RESULTS

Parental concerns and challenges affected parents in their parental role and their everyday family life. Three overarching themes described the struggles in balancing life as a parent and as a patient: navigating dual roles as a parent with cancer , impact of cancer on parenting , and impact on family life . Parents' primary focus was on their children's well-being, and they struggled to manage their own expectations of parenting and the demands on their role in the family.

CONCLUSION

The results highlight the complexity of being a parent with cancer while caring for dependent children. To support parents during the cancer journey, it is important to understand the consequences of their illness on their parental role and the family.

IMPLICATIONS FOR PRACTICE

Supporting parents to feel secure in their parental role and providing support to them during their cancer journey should be integrated into routine cancer care, where parenting concerns and challenges are addressed.

摘要

背景

被诊断出癌症的父母必须平衡自己的病情和照顾责任。这可能导致父母的压力,并对整个家庭的幸福产生负面影响。为了提供足够的支持,有必要更深入地了解癌症患者父母的经历。

目的

本研究旨在探讨照顾 18 岁以下依赖子女的癌症患者父母的育儿问题和挑战。

方法

对 22 名癌症患者父母进行了半结构化访谈。访谈进行了录音、转录,并使用主题分析进行了分析。

结果

父母的担忧和挑战影响了他们的父母角色和日常生活。三个总体主题描述了平衡父母和患者双重角色的困难:作为癌症患者的父母的角色冲突、癌症对育儿的影响、以及对家庭生活的影响。父母的首要关注点是孩子的幸福,他们努力管理自己对育儿的期望和家庭角色的要求。

结论

研究结果突出了癌症患者在照顾依赖子女时的复杂性。为了在癌症治疗期间支持父母,了解他们的病情对其父母角色和家庭的影响非常重要。

实践意义

在常规癌症护理中,应将支持父母感到自己的父母角色安全,并在他们的癌症治疗期间为他们提供支持纳入其中,同时解决育儿问题和挑战。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/67b9/11610917/7468ffc376bc/cn-48-e09-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/67b9/11610917/7468ffc376bc/cn-48-e09-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/67b9/11610917/7468ffc376bc/cn-48-e09-g001.jpg

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Support Care Cancer. 2022 Oct;30(10):8301-8311. doi: 10.1007/s00520-022-07278-x. Epub 2022 Jul 13.
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