Torregosa Marivic B, Sada Rosemary, Perez Ilse
College of Nursing and Health Sciences, Texas A&M International University, Laredo, Texas, USA.
Nurs Health Sci. 2018 Sep;20(3):361-369. doi: 10.1111/nhs.12414. Epub 2018 Mar 7.
Globally, stroke is the leading cause of death and disease burden. While post-stroke studies have been conducted, they excluded survivors and caregivers from underserved communities. It can be argued that the impact of stroke on survivors and caregivers from underserved communities may be greater. Using qualitative exploratory research design, the purpose of this study was to examine the lived experiences of post-stroke recovery and readjustment among stroke survivors and stroke caregivers from an underserved community. Two separate focus groups were conducted, one each for stroke survivors and caregivers. Thematic analysis was used to analyze the data. Finding meaning in life is the general theme of stroke survivors' and stroke caregivers' journey of post-stroke recovery and readjustment. For stroke survivors, the transition to stroke recovery required time, life goal reconfiguration, willpower, humor, and network support. Post-stroke caregiving is a daily navigation and negotiation influenced by internal and external processes. Personal, economic, and socio-cultural nuances play a role in how post-stroke recovery is lived and experienced. Study findings highlight the importance of policies to support family-centered and system-level advocacy in post-stroke care.
在全球范围内，中风是导致死亡和疾病负担的主要原因。虽然已经开展了中风后的研究，但这些研究将服务不足社区的幸存者和护理人员排除在外。可以说，中风对服务不足社区的幸存者和护理人员的影响可能更大。本研究采用定性探索性研究设计，旨在考察服务不足社区中风幸存者和中风护理人员中风后康复及重新适应的生活经历。开展了两个独立的焦点小组，分别针对中风幸存者和护理人员。采用主题分析法对数据进行分析。在生活中寻找意义是中风幸存者和中风护理人员中风后康复及重新适应历程的总体主题。对于中风幸存者而言，向中风康复的转变需要时间、重新规划生活目标、意志力、幽默感以及网络支持。中风后的护理是一个受内部和外部过程影响的日常摸索和协商过程。个人、经济和社会文化细微差别在中风后康复的生活体验方式中发挥着作用。研究结果凸显了支持中风护理中以家庭为中心和系统层面宣传政策的重要性。
