Jarab Anan, Alefishat Eman, Mukattash Tareq, Alzoubi Karem, Pinto Sharrel
Jordan University of Science and Technology, Irbid, Jordan.
Int J Clin Pharm. 2018 Jun;40(3):573-579. doi: 10.1007/s11096-018-0614-z. Epub 2018 Mar 14.
Background The quality of life has been shown to be poor in patients with chronic obstructive pulmonary disease (COPD). Furthermore, patients' perspective and attitudes toward COPD and its impact on their quality of life have been remarkably ignored. Objective To explore patients' views and perceptions regarding COPD and its impact on their quality of life. Setting COPD clinic at the Royal Medical Services Hospital, Amman, Jordan. Method Focus groups discussions to explore patients' views and perceptions about COPD were conducted using purposive sampling technique till data saturation achieved. A predesigned topic guides including knowledge about COPD and its management and the impact of COPD on the quality of life in patients with COPD was used to facilitate discussion during the interviews. All interviews were transcribed and analyzed using a thematic analysis approach. Main outcome measure Impact of COPD on patients' quality of life. Results The main themes emerged included information needs about COPD and its management, physical and psychological impact of COPD and reliance on others. The most commonly expressed problem was breathlessness which restricted physical activity and led to panic and anxiety attacks. Constant breathlessness coupled with anxiety can force COPD patient to avoid all physical activity and becoming reliant on others. Conclusion In addition to the lack of knowledge about COPD and its management, it was evident that COPD had a negative physical and psychological impact on COPD patients. Future disease management and clinical pharmacy services programs should address the current study findings in order to improve the health outcomes for patients with COPD.
背景 慢性阻塞性肺疾病（COPD）患者的生活质量已被证明较差。此外，患者对COPD及其对生活质量影响的观点和态度一直被显著忽视。目的 探讨患者对COPD及其对生活质量影响的看法和认知。地点 约旦安曼皇家医疗服务医院的COPD诊所。方法 采用目的抽样技术进行焦点小组讨论，以探讨患者对COPD的看法和认知，直至达到数据饱和。使用预先设计的主题指南，包括关于COPD及其管理的知识以及COPD对COPD患者生活质量的影响，以促进访谈期间的讨论。所有访谈均进行转录，并采用主题分析方法进行分析。主要结局指标 COPD对患者生活质量的影响。结果 出现的主要主题包括对COPD及其管理的信息需求、COPD的身心影响以及对他人的依赖。最常表达的问题是呼吸困难，它限制了身体活动，并导致恐慌和焦虑发作。持续的呼吸困难加上焦虑会迫使COPD患者避免所有身体活动，并变得依赖他人。结论 除了对COPD及其管理缺乏了解外，很明显COPD对COPD患者有负面的身心影响。未来的疾病管理和临床药学服务项目应解决当前的研究结果，以改善COPD患者的健康结局。
