Bramstedt Katrina A
Bond University School of Medicine, University Drive, Gold Coast, Queensland, Australia.
J Patient Exp. 2018 Mar;5(1):16-20. doi: 10.1177/2374373517718146. Epub 2017 Jul 17.
This study is a long-term follow-up on the health and quality of life of Good Samaritan living organ donors who donated an average of 10 years ago. Thirteen donors (kidney, liver, and lung) completed 2 surveys. Data from the RAND 36-Item Health Survey showed that for all domains, as well as the physical and mental component summary scales, the Good Samaritan donor outcomes were superior to the general population ( < .0001). Data from the European Living Donor Satisfaction Survey (EULID) showed that in all 8 theme areas, the donors reported statistically significant positive reactions as compared to negative reactions. With regard to self-reported health status, there was a strong, positive correlation between the RAND 36-Item Health Survey and the EULID (n = 13, Pearson correlation coefficient: 0.874). All but 1 donor reported good, very good, or excellent health status. Although donors overwhelmingly reported positivity about the donation experience, narrative comments about adverse events and recipient death must keep transplant teams alert to these critical areas. Good Samaritan organ donors come to the hospital healthy, give a gift to a stranger, and sometimes leave and linger disabled. Donor teams should be observing, questioning, and responding in an effort to maximize their welfare. This research is unique because investigation of the long-term health and psychosocial outcomes of Good Samaritan organ donors is rare. Existing studies that report long-term outcomes of kidney donors do not separately analyze Good Samaritan donor data from related living donors.
本研究是对平均在10年前进行活体器官捐赠的乐善好施者活体器官捐献者的健康状况和生活质量进行的长期随访。13名捐献者(肾脏、肝脏和肺)完成了2项调查。兰德36项健康调查的数据显示,在所有领域以及身体和心理成分汇总量表方面,乐善好施者捐献者的结果均优于普通人群(P<0.0001)。欧洲活体捐献者满意度调查(EULID)的数据显示,在所有8个主题领域中,与负面反应相比,捐献者报告了具有统计学意义的积极反应。关于自我报告的健康状况,兰德36项健康调查与EULID之间存在强烈的正相关(n = 13,皮尔逊相关系数:0.874)。除1名捐献者外,所有捐献者均报告健康状况良好、非常好或极佳。尽管捐献者压倒性地报告了对捐赠经历的积极态度,但关于不良事件和受者死亡的叙述性评论必须让移植团队对这些关键领域保持警惕。乐善好施者器官捐献者健康地来到医院,给一个陌生人一份礼物,有时离开时却留下残疾。捐献者团队应该进行观察、询问并做出回应,以努力最大化他们的福利。这项研究是独一无二的,因为对乐善好施者器官捐献者的长期健康和心理社会结果的调查很少见。现有的报告肾脏捐献者长期结果的研究并未将乐善好施者捐献者的数据与相关活体捐献者的数据分开分析。