Loonen Jacqueline J, Blijlevens Nicole Ma, Prins Judith, Dona Desiree Js, Den Hartogh Jaap, Senden Theo, van Dulmen-Den Broeder Eline, van der Velden Koos, Hermens Rosella Pmg
Department of Hematology, Radboudumc, Geert Grooteplein-Zuid 8 (route 476), 6525 GA Nijmegen, NL.
Department of Medical Psychology, Radboudumc, Geert Grooteplein- zuid 10 (route 840), 6525 GA Nijmegen, NL.
Int J Integr Care. 2018 Jan 16;18(1):4. doi: 10.5334/ijic.3046.
Survivors of childhood and adult-onset cancer are at lifelong risk for the development of late effects of treatment that can lead to serious morbidity and premature mortality. Regular long-term follow-up aiming for prevention, early detection and intervention of late effects can preserve or improve health. The heterogeneous and often serious character of late effects emphasizes the need for specialized cancer survivorship care clinics. Multidisciplinary cancer survivorship care requires a coordinated and well integrated health care environment for risk based screening and intervention. In addition survivors engagement and adherence to the recommendations are also important elements. We developed an innovative model for integrated care for cancer survivors, the "Personalized Cancer Survivorship Care Model", that is being used in our clinic. This model comprises 1. Personalized follow-up care according to the principles of Person Centered Care, aiming to empower survivors and to support self management, and 2. Organization according to a multidisciplinary and risk based approach. The concept of person centered care is based on three components: initiating, integrating and safeguarding the partnership with the patient. This model has been developed as a universal model of care that will work for all cancer survivors in different health care systems. It could be used for studies to improve self efficacy and the cost-effectiveness of cancer survivorship care.
儿童期和成年期癌症幸存者终生面临治疗后期效应的风险,这些效应可能导致严重的发病情况和过早死亡。定期进行长期随访,旨在预防、早期发现和干预后期效应,可维持或改善健康状况。后期效应的异质性以及通常的严重性凸显了设立专门的癌症幸存者护理诊所的必要性。多学科癌症幸存者护理需要一个协调且整合良好的医疗保健环境,以便进行基于风险的筛查和干预。此外,幸存者的参与度以及对建议的依从性也是重要因素。我们开发了一种针对癌症幸存者的综合护理创新模式,即“个性化癌症幸存者护理模式”,该模式正在我们的诊所中使用。此模式包括:1. 根据以患者为中心的护理原则提供个性化随访护理,旨在增强幸存者的能力并支持自我管理;2. 按照多学科和基于风险的方法进行组织。以患者为中心的护理概念基于三个要素:启动、整合并维护与患者的伙伴关系。该模式已被开发为一种通用护理模式,适用于不同医疗保健系统中的所有癌症幸存者。它可用于开展研究,以提高自我效能以及癌症幸存者护理的成本效益。