识别癌症患者对开发临床应用程序的需求和偏好：定性研究

Identification of the Needs and Preferences of Patients With Cancer for the Development of a Clinic App: Qualitative Study.

作者信息

Weis Joachim, Wolf Lucy Raphaela, Boerries Melanie, Kassahn Daniela, Boeker Martin, Dresch Carolin

机构信息

Chair for Self-Help Research, Comprehensive Cancer Center, Medical Faculty, University Clinic Freiburg, Freiburg, Germany.

Institut für Medizinische Bioinformatik und Systemmedizin, Medical Faculty University Freiburg, University Clinic Freiburg, Freiburg, Germany.

出版信息

JMIR Cancer. 2023 Jul 27;9:e40891. doi: 10.2196/40891.

DOI:10.2196/40891

PMID:37498653

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10415940/

Abstract

BACKGROUND

Mobile health (mHealth) tools were developed during the past decades and are increasingly used by patients in cancer care too. Scientific research in the development of mHealth services is required in order to meet the various needs of patients and test usability.

OBJECTIVE

The aim of this study is to assess patients' needs, preferences, and usability of an app (My University Clinic [MUC] app) developed by the Comprehensive Cancer Center Freiburg (CCCF) Germany.

METHODS

Based on a qualitative cross-sectional approach, we conducted semistructured interviews with patients with cancer, addressing their needs, preferences, and usability of the designed MUC app. Patients treated by the CCCF were recruited based on a purposive sampling technique focusing on age, sex, cancer diagnoses, and treatment setting (inpatient, outpatient). Data analysis followed the qualitative content analysis according to Kuckartz and was performed using computer-assisted software (MAXQDA).

RESULTS

For the interviews, 17 patients with cancer were selected, covering a broad range of sampling parameters. The results showed that patients expect benefits in terms of improved information about the disease and communication with the clinic staff. Demands for additional features were identified (eg, a list of contact persons and medication management). The most important concerns referred to data security and the potential restriction of personal contacts with health care professionals of the clinical departments of the CCCF. In addition, some features for improving the design of the MUC app with respect to usability or for inclusion of interacting tools were suggested by the patients.

CONCLUSIONS

The results of this qualitative study were discussed within the multidisciplinary team and the MUC app providers. Patients' perspectives and needs will be included in further development of the MUC app. There will be a second study phase in which patients will receive a test version of the MUC app and will be asked about their experiences with it.

TRIAL REGISTRATION

Deutsches Register Klinischer Studien DRKS00022162; https://drks.de/search/de/trial/DRKS00022162.

摘要

背景

移动健康（mHealth）工具在过去几十年中得到了发展，癌症护理患者对其的使用也日益增多。为满足患者的各种需求并测试其可用性，需要对mHealth服务的开发进行科学研究。

目的

本研究旨在评估德国弗莱堡综合癌症中心（CCCF）开发的一款应用程序（我的大学诊所[MUC]应用程序）的患者需求、偏好和可用性。

方法

基于定性横断面研究方法，我们对癌症患者进行了半结构化访谈，了解他们对设计的MUC应用程序的需求、偏好和可用性。根据目的性抽样技术，以年龄、性别、癌症诊断和治疗环境（住院、门诊）为重点，招募了CCCF治疗的患者。数据分析按照Kuckartz的定性内容分析法进行，并使用计算机辅助软件（MAXQDA）完成。

结果

访谈选取了17名癌症患者，涵盖了广泛的抽样参数。结果显示，患者期望在改善疾病信息和与诊所工作人员沟通方面有所获益。确定了对其他功能的需求（例如，联系人列表和药物管理）。最重要的担忧涉及数据安全以及与CCCF临床科室医护人员个人接触可能受到的限制。此外，患者还提出了一些关于改善MUC应用程序可用性设计或纳入交互工具的功能建议。