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基于意大利国家核心课程,通过在线问卷对医疗保健提供者的儿科姑息治疗知识进行测评。

Measuring Knowledge of Healthcare Providers on Pediatric Palliative Care with an Online Questionnaire Based on the National Core Curriculum in Italy.

作者信息

Zanello Elisa, Vecchi Roberta, Zamagni Giulia, Biagi Maria Celeste, Bruno Irene, Cragnolin Elisa, Danielli Elisabetta, Paoletti Silvia, Rabusin Marco, Ronfani Luca, Pessa Valente Emanuelle

机构信息

Institute for Maternal and Child Health IRCSS "Burlo Garofolo", 34137 Trieste, Italy.

Pineta del Carso Hospice, 34011 Trieste, Italy.

出版信息

Healthcare (Basel). 2023 Jul 7;11(13):1971. doi: 10.3390/healthcare11131971.

DOI:10.3390/healthcare11131971
PMID:37444805
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10341144/
Abstract

There is a lack of highly reliable tools evaluating healthcare professionals' competences on Pediatric Palliative Care (PPC) and Pain Therapy (PT). The aim of this study is to document the development of an online questionnaire to assess Perceived, Wished and Actual Knowledge of healthcare workers on PPC/PT. The tool was built on the basis of the Italian Society for Palliative Care PPC Core Curriculum (CC) for physicians, nurses and psychologists. Face validity, internal consistency and the underlying structure were evaluated after a field testing in a referral hospital, Friuli-Venezia Giulia, Italy. One hundred five respondents completed the questionnaire. High internal consistency for both scales of Perceived and Wished Knowledge was found (α = 0.95 and α = 0.94, respectively). Psychologists reported higher levels of self-Perceived skills on the psychosocial needs of the child and family at the end of life ( = 0.006), mourning ( = 0.003) and ethics and deontology in PT/PC ( = 0.049). Moreover, when Actual Knowledge was tested, they also provided the highest number of correct answers ( = 0.022). No differences were found by profession for Wished Knowledge. The questionnaire showed promising psychometric properties. Our findings suggest the need of continuous training in this field and identify contents to be addressed in future training programs.

摘要

目前缺乏高度可靠的工具来评估医疗保健专业人员在儿童姑息治疗(PPC)和疼痛治疗(PT)方面的能力。本研究的目的是记录一份在线问卷的开发过程,以评估医护人员对PPC/PT的感知知识、期望知识和实际知识。该工具是基于意大利姑息治疗协会针对医生、护士和心理学家的PPC核心课程(CC)构建的。在意大利弗留利-威尼斯朱利亚的一家转诊医院进行现场测试后,对该工具的表面效度、内部一致性和潜在结构进行了评估。105名受访者完成了问卷。发现感知知识和期望知识两个量表的内部一致性都很高(分别为α = 0.95和α = 0.94)。心理学家报告说,在生命末期儿童和家庭的心理社会需求(P = 0.006)、哀悼(P = 0.003)以及PT/PC中的伦理和道义学方面,他们自我感知的技能水平更高(P = 0.049)。此外,在测试实际知识时,他们给出的正确答案数量也最多(P = 0.022)。对于期望知识,不同专业之间没有发现差异。该问卷显示出良好的心理测量特性。我们的研究结果表明,在这一领域需要持续培训,并确定未来培训项目中要涉及的内容。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/33d2/10341144/4e9289603683/healthcare-11-01971-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/33d2/10341144/4e9289603683/healthcare-11-01971-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/33d2/10341144/4e9289603683/healthcare-11-01971-g001.jpg

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本文引用的文献

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Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination.儿科姑息与临终关怀教育:课程使用与推广
J Pain Symptom Manage. 2022 Mar;63(3):349-358. doi: 10.1016/j.jpainsymman.2021.11.017. Epub 2021 Dec 8.
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An estimation of the number of children requiring pediatric palliative care in Italy.意大利儿科姑息治疗需求儿童数量的估计。
Ital J Pediatr. 2021 Jan 7;47(1):4. doi: 10.1186/s13052-020-00952-y.
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Knowledge of primary care pediatricians about pediatric palliative care in the Principality of Asturias, Spain.
西班牙阿斯图里亚斯公国初级保健儿科医生对儿科姑息治疗的认识。
Bol Med Hosp Infant Mex. 2020;77(4):195-201. doi: 10.24875/BMHIM.20000046.
4
Training in pediatric palliative care in Italy: still much to do.意大利儿科姑息治疗培训:仍有许多工作要做。
Ann Ist Super Sanita. 2019 Jul-Sep;55(3):240-245. doi: 10.4415/ANN_19_03_07.
5
Barriers to Palliative Care in Pediatric Oncology in Switzerland: A Focus Group Study.瑞士儿童肿瘤姑息治疗的障碍:一项焦点小组研究
J Pediatr Oncol Nurs. 2020 Jan/Feb;37(1):35-45. doi: 10.1177/1043454219871082. Epub 2019 Sep 3.
6
A consensus conference report on defining the eligibility criteria for pediatric palliative care in Italy.意大利制定儿科姑息治疗资格标准的共识会议报告。
Ital J Pediatr. 2019 Jul 22;45(1):89. doi: 10.1186/s13052-019-0681-3.
7
Development and Implementation of a Survey to Assess Health-Care Provider's Competency, Attitudes, and Knowledge About Perinatal Palliative Care.一项评估医疗保健提供者围产期姑息治疗能力、态度和知识的调查的开发与实施
J Palliat Care. 2019 Jul;34(3):151-159. doi: 10.1177/0825859718790627. Epub 2018 Jul 31.
8
Awareness of pediatric palliative care among health care workers.医护人员对儿童姑息治疗的认知。
Wiad Lek. 2018;71(3 pt 1):574-578.
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Knowledge, Beliefs, and Behaviors Related to Palliative Care Delivery Among Pediatric Oncology Health Care Providers.儿科肿瘤医疗服务提供者中与姑息治疗提供相关的知识、信念和行为
J Pediatr Oncol Nurs. 2018 Jul/Aug;35(4):247-256. doi: 10.1177/1043454218764885. Epub 2018 Apr 4.
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Educational Needs of Health Professionals Caring for Adolescents and Young Adults with Cancer.照顾青少年和青年癌症患者的卫生专业人员的教育需求。
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