Olsson Cecilia, Björk Maria, Ringnér Anders
Karlstad University, Department of Health Sciences, Karlstad, Sweden.
Jönköping University, CHILD research group, Department of Nursing, School of Health and Welfare, Jönköping, Sweden.
J Pediatr Nurs. 2018 Sep-Oct;42:e97-e102. doi: 10.1016/j.pedn.2018.02.013. Epub 2018 Apr 5.
The Pediatric Inventory for Parents (PIP) measures parental stress related to caring for a child with an illness. However, no Swedish translation is available.
This study reports a Swedish translation of the PIP and psychometric properties of the instrument.
This is a descriptive/methodological paper. The PIP was translated and culturally adapted to Swedish, and comprehensibility was tested. Data were collected twice from 48 parents of children with different illnesses, and initial psychometric properties of the instrument were examined. The IES-R (Impact of Event Scale-Revised) was used for concurrent validity.
The Swedish version of the PIP demonstrated good correlations with the IES-R, and temporal changes were similar. Endorsement frequencies and test-retest were also satisfactory. When comparing groups of parents, the parents of children with cancer were statistically significantly more distressed, both on total score and for emotional distress and role function. Discriminative validity was demonstrated by comparing parents of children with cancer with parents of children with other diseases.
The Swedish version of the PIP seems to be a valid and reliable instrument. However, as we used relatively small sample, for the future, we suggest further testing with larger samples.
Clinicians and researchers seeking to measure parental distress in chronic illness could use the Swedish version of the PIP.
《父母儿科量表》(PIP)用于衡量与照顾患病儿童相关的父母压力。然而,目前尚无瑞典语译本。
本研究报告了PIP的瑞典语译本及该工具的心理测量特性。
这是一篇描述性/方法学论文。对PIP进行了翻译并根据瑞典文化进行了调整,测试了其可理解性。从48名患有不同疾病儿童的父母那里收集了两次数据,并检验了该工具的初步心理测量特性。采用事件影响量表修订版(IES-R)进行同时效度检验。
PIP的瑞典语版本与IES-R显示出良好的相关性,时间变化也相似。认可频率和重测结果也令人满意。在比较不同组别的父母时,癌症患儿的父母在总分、情感困扰和角色功能方面的痛苦程度在统计学上显著更高。通过比较癌症患儿的父母与其他疾病患儿的父母,证明了区分效度。
PIP的瑞典语版本似乎是一种有效且可靠的工具。然而,由于我们使用的样本相对较小,未来建议使用更大的样本进行进一步测试。
寻求测量慢性病中父母痛苦程度的临床医生和研究人员可以使用PIP的瑞典语版本。