Lassen K, Nymo L S, Kørner H, Thon K, Grindstein T, Wasmuth H H, Moger T, Bjørnbeth B A, Norderval S, Eriksen M T, Viste A
1 Gastrointestinal Surgery, University Hospital of North Norway, Tromsø, Norway.
2 Faculty of Health Science, Arctic University of Norway, Tromsø, Norway.
Scand J Surg. 2018 Sep;107(3):201-207. doi: 10.1177/1457496918766697. Epub 2018 Apr 9.
There is an increasing demand for high-quality data for the outcome of health care. Diseases of the gastro-intestinal tract involve large patient groups often presenting with serious or life-threatening conditions. Complications may affect treatment outcomes and lead to increased mortality or reduced quality of life. A continuous, risk-adjusted monitoring of major complications is important to improve the quality of health care to patients undergoing gastrointestinal resections. We present the development of the Norwegian Registry for Gastrointestinal Surgery, a national registry for colorectal, upper gastrointestinal, and hepato-pancreato-biliary resections in Norway.
A narrative and qualitative presentation of the development and current state of the registry.
We present the variables and the analysis tools and provide examples for the potential in quality improvement and research. Core characteristics include a strictly limited set of variables to reflect important risk factors, the procedure performed, and the clinical outcomes.
A registry with the potential to present complete national cohort data is a powerful tool for quality improvement and research.
对高质量医疗保健结果数据的需求日益增加。胃肠道疾病涉及庞大的患者群体，这些患者常常表现出严重或危及生命的状况。并发症可能影响治疗结果，并导致死亡率上升或生活质量下降。对主要并发症进行持续的、风险调整后的监测对于提高接受胃肠道切除术患者的医疗保健质量至关重要。我们介绍了挪威胃肠道手术登记处的发展情况，这是一个挪威全国性的结直肠、上胃肠道和肝胰胆切除术登记处。
对登记处的发展和现状进行叙述性和定性介绍。
我们展示了变量和分析工具，并提供了质量改进和研究潜力的示例。核心特征包括一组严格限定的变量，以反映重要风险因素、所实施的手术以及临床结果。
一个有潜力提供完整全国队列数据的登记处是质量改进和研究的有力工具。
