Soheilipour Maryam, Kazemi Mehdi, Taheri Behjat, Adibi Peyman, Abdollahpour Ibrahim
Gastroenterology and Hepatology Research Center, Isfahan University of Medical Sciences, Isfahan, Iran.
Anesthesiology and Critical Care Research Center, Isfahan University of Medical Sciences, Isfahan, Iran.
Adv Biomed Res. 2023 Apr 28;12:115. doi: 10.4103/abr.abr_230_21. eCollection 2023.
Disease registration is an organized system for collecting, storing, retrieving, analyzing a particular disease or exposure to known substances in a specific population. The aim of this study was to assess the feasibility and design of the registration system for upper gastrointestinal bleeding patients based on patients referring to Al-Zahra and Khorshid hospitals, Isfahan, Iran.
This study is a research action study in which the members of the registration system team are hospital triage physicians, internal residents in the Emergency department of hospital, subspecialty assistants and gastroenterologists, statisticians (epidemiologists and methodologists), and two trained persons were specified to collect medical information and documents. The data collection tool is a researcher-made checklist. Based on the available tools, the most important criteria related to gastrointestinal bleeding were selected. In the next step, the criteria selected in the council, including team members, were reviewed and a preliminary draft was prepared to record the information of patients.
The results indicated the final version of the checklist in three parts including demographic variables (age, sex, education, .), main variables (as the minimum data required by a person to register in the checklist (patient's clinical signs)), extended main variables (its information is designed to be used to diagnose, treat, and follow-up the patient in later stages).
It seems to be predictable by establishing a system for recording gastrointestinal bleeding diseases, disease prevalence, monitoring services and treatment of patients, survival analysis and evaluation of clinical care outcomes, finding patients at higher risk for emergency treatment, reviewing drug interventions, and interventional activities.
疾病登记是一个有组织的系统，用于收集、存储、检索和分析特定人群中某种特定疾病或已知物质暴露情况。本研究的目的是基于转诊至伊朗伊斯法罕的阿尔-扎赫拉医院和霍希德医院的患者，评估上消化道出血患者登记系统的可行性和设计。
本研究是一项行动研究，登记系统团队成员包括医院分诊医生、医院急诊科住院医师、专科助理和胃肠病学家、统计学家（流行病学家和方法学家），并指定两名经过培训的人员收集医疗信息和文件。数据收集工具是研究者编制的清单。根据现有工具，选择了与胃肠道出血相关的最重要标准。下一步，对包括团队成员在内的委员会选定标准进行审查，并编制初步草案以记录患者信息。
结果显示清单最终版本分为三个部分，包括人口统计学变量（年龄、性别、教育程度等）、主要变量（作为人员在清单中登记所需的最低数据（患者临床体征））、扩展主要变量（其信息旨在用于后期诊断、治疗和随访患者）。
通过建立一个记录胃肠道出血疾病、疾病患病率、监测患者服务和治疗、生存分析以及评估临床护理结果、发现急诊治疗高风险患者、审查药物干预和干预活动的系统，似乎可以实现可预测性。
