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实施基于系统的创新,以改善自闭症谱系障碍儿童早期筛查、诊断和治疗服务的可及性:自闭症谱系障碍儿科、早期发现、参与和服务网络研究。

Implementing systems-based innovations to improve access to early screening, diagnosis, and treatment services for children with autism spectrum disorder: An Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services network study.

机构信息

1 Boston University School of Medicine, USA.

2 University of Massachusetts Boston, USA.

出版信息

Autism. 2019 Apr;23(3):653-664. doi: 10.1177/1362361318766238. Epub 2018 Apr 10.

Abstract

In 2013, the National Institute of Mental Health funded five trials of unique, multicomponent, systems-based innovations designed to improve access to early screening, diagnosis, and treatment of autism spectrum disorder-collectively known as the Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services Network. As part of an ongoing effort to pool data and learn from shared experience, we collected information across all studies about innovation components and implementation strategies. First, each study group completed standardized checklists based on the Template for Intervention Description and Replication and the Expert Recommendation for Implementing Change. Then, we interviewed principal and co-investigators of each study (n = 9) to further explore innovation components and assess barriers and facilitators to implementation. Innovation strategies were diverse (five different autism spectrum disorder screeners were used, 40% included early intervention trainings, 60% involved new technology). Common implementation strategies included developing stakeholder relationships and provider trainings. Barriers included inefficient systems of care, difficulty engaging families in the innovations, provider attitudes, and organizational culture (e.g. difficulty changing clinic processes). These findings suggest that-despite diverse settings and a variety of innovation content-common facilitators and challenges exist in implementing innovations to enhance access to early autism spectrum disorder screening, diagnosis, and treatment.

摘要

2013 年,美国国家心理健康研究所资助了五项独特的、多成分的、基于系统的创新试验,旨在改善自闭症谱系障碍的早期筛查、诊断和治疗的机会——统称为自闭症谱系障碍儿科、早期检测、参与和服务网络。作为正在进行的汇集数据和从共同经验中学习的努力的一部分,我们收集了所有研究中关于创新成分和实施策略的信息。首先,每个研究小组根据干预描述和复制模板以及实施变革的专家建议完成标准化清单。然后,我们采访了每项研究的主要研究人员和共同研究人员(n=9),以进一步探讨创新成分,并评估实施的障碍和促进因素。创新策略多种多样(使用了五种不同的自闭症谱系筛查器,40%包括早期干预培训,60%涉及新技术)。常见的实施策略包括发展利益相关者关系和提供培训。障碍包括护理系统效率低下、难以让家庭参与创新、提供者态度和组织文化(例如,难以改变诊所流程)。这些发现表明,尽管实施环境和创新内容多种多样,但在实施创新以增强早期自闭症谱系障碍筛查、诊断和治疗的机会方面存在共同的促进因素和挑战。

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