• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

实施基于系统的创新,以改善自闭症谱系障碍儿童早期筛查、诊断和治疗服务的可及性:自闭症谱系障碍儿科、早期发现、参与和服务网络研究。

Implementing systems-based innovations to improve access to early screening, diagnosis, and treatment services for children with autism spectrum disorder: An Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services network study.

机构信息

1 Boston University School of Medicine, USA.

2 University of Massachusetts Boston, USA.

出版信息

Autism. 2019 Apr;23(3):653-664. doi: 10.1177/1362361318766238. Epub 2018 Apr 10.

DOI:10.1177/1362361318766238
PMID:29633852
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6167204/
Abstract

In 2013, the National Institute of Mental Health funded five trials of unique, multicomponent, systems-based innovations designed to improve access to early screening, diagnosis, and treatment of autism spectrum disorder-collectively known as the Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services Network. As part of an ongoing effort to pool data and learn from shared experience, we collected information across all studies about innovation components and implementation strategies. First, each study group completed standardized checklists based on the Template for Intervention Description and Replication and the Expert Recommendation for Implementing Change. Then, we interviewed principal and co-investigators of each study (n = 9) to further explore innovation components and assess barriers and facilitators to implementation. Innovation strategies were diverse (five different autism spectrum disorder screeners were used, 40% included early intervention trainings, 60% involved new technology). Common implementation strategies included developing stakeholder relationships and provider trainings. Barriers included inefficient systems of care, difficulty engaging families in the innovations, provider attitudes, and organizational culture (e.g. difficulty changing clinic processes). These findings suggest that-despite diverse settings and a variety of innovation content-common facilitators and challenges exist in implementing innovations to enhance access to early autism spectrum disorder screening, diagnosis, and treatment.

摘要

2013 年,美国国家心理健康研究所资助了五项独特的、多成分的、基于系统的创新试验,旨在改善自闭症谱系障碍的早期筛查、诊断和治疗的机会——统称为自闭症谱系障碍儿科、早期检测、参与和服务网络。作为正在进行的汇集数据和从共同经验中学习的努力的一部分,我们收集了所有研究中关于创新成分和实施策略的信息。首先,每个研究小组根据干预描述和复制模板以及实施变革的专家建议完成标准化清单。然后,我们采访了每项研究的主要研究人员和共同研究人员(n=9),以进一步探讨创新成分,并评估实施的障碍和促进因素。创新策略多种多样(使用了五种不同的自闭症谱系筛查器,40%包括早期干预培训,60%涉及新技术)。常见的实施策略包括发展利益相关者关系和提供培训。障碍包括护理系统效率低下、难以让家庭参与创新、提供者态度和组织文化(例如,难以改变诊所流程)。这些发现表明,尽管实施环境和创新内容多种多样,但在实施创新以增强早期自闭症谱系障碍筛查、诊断和治疗的机会方面存在共同的促进因素和挑战。

相似文献

1
Implementing systems-based innovations to improve access to early screening, diagnosis, and treatment services for children with autism spectrum disorder: An Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services network study.实施基于系统的创新,以改善自闭症谱系障碍儿童早期筛查、诊断和治疗服务的可及性:自闭症谱系障碍儿科、早期发现、参与和服务网络研究。
Autism. 2019 Apr;23(3):653-664. doi: 10.1177/1362361318766238. Epub 2018 Apr 10.
2
Improving the early screening procedure for autism spectrum disorder in young children: Experience from a community-based model in shanghai.提高幼儿自闭症谱系障碍的早期筛查程序:来自上海基于社区模式的经验。
Autism Res. 2018 Sep;11(9):1206-1217. doi: 10.1002/aur.1984. Epub 2018 Sep 19.
3
Promoting early autism detection and intervention in underserved communities: study protocol for a pragmatic trial using a stepped-wedge design.促进服务不足社区的早期自闭症检测和干预:使用阶梯式楔形设计的实用试验研究方案。
BMC Psychiatry. 2019 Jun 7;19(1):169. doi: 10.1186/s12888-019-2150-3.
4
Sustainability of an early detection program for autism spectrum disorder over the course of 8 years.自闭症谱系障碍早期检测计划的 8 年可持续性。
Autism. 2018 Nov;22(8):1018-1024. doi: 10.1177/1362361317717977. Epub 2017 Oct 25.
5
Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 4 Years - Early Autism and Developmental Disabilities Monitoring Network, Seven Sites, United States, 2010, 2012, and 2014.4 岁儿童自闭症谱系障碍的流行率和特征——早期自闭症和发育障碍监测网络,美国七个地点,2010、2012 和 2014 年。
MMWR Surveill Summ. 2019 Apr 12;68(2):1-19. doi: 10.15585/mmwr.ss6802a1.
6
Family navigation to increase evaluation for autism spectrum disorder in toddlers: Screening and Linkage to Services for Autism pragmatic randomized trial.家庭引导以增加幼儿自闭症谱系障碍评估:自闭症筛查与服务联系实用随机试验
Autism. 2021 May;25(4):946-957. doi: 10.1177/1362361320974175. Epub 2020 Nov 27.
7
Assessing Community Needs for Autism Spectrum Disorder: A Review of Rural/Frontier Needs Through Community Outreach With Developmental Pediatrics.评估自闭症谱系障碍的社区需求:通过发展儿科的社区外展服务评估农村/边远地区的需求。
Clin Pediatr (Phila). 2024 Nov;63(11):1568-1572. doi: 10.1177/00099228241233803. Epub 2024 Feb 20.
8
Early Screening of Autism Spectrum Disorder: Recommendations for Practice and Research.自闭症谱系障碍的早期筛查:实践与研究建议
Pediatrics. 2015 Oct;136 Suppl 1(Suppl 1):S41-59. doi: 10.1542/peds.2014-3667D.
9
Adherence to screening and referral guidelines for autism spectrum disorder in toddlers in pediatric primary care.在儿科初级保健中,坚持对幼儿自闭症谱系障碍进行筛查和转介的指导原则。
PLoS One. 2020 May 7;15(5):e0232335. doi: 10.1371/journal.pone.0232335. eCollection 2020.
10
Early diagnosis of autism in the community is associated with marked improvement in social symptoms within 1-2 years.社区中自闭症的早期诊断与 1-2 年内社会症状的显著改善有关。
Autism. 2022 Aug;26(6):1353-1363. doi: 10.1177/13623613211049011. Epub 2021 Oct 8.

引用本文的文献

1
Item Analysis of an Early Social Responsiveness Scale for Assessing Autism Risk.用于评估自闭症风险的早期社会反应量表的项目分析
Behav Sci (Basel). 2025 May 1;15(5):615. doi: 10.3390/bs15050615.
2
Building Capacity: A Systematic Review of Training in the Diagnosis of Autism for Community-Based Clinicians.能力建设:对社区临床医生自闭症诊断培训的系统评价
Autism Res. 2025 Apr;18(4):690-709. doi: 10.1002/aur.70014. Epub 2025 Mar 5.
3
Feasibility of the Autism Navigator JumpStart to Coaching in Everyday Activities course in South Africa.

本文引用的文献

1
The Early Screening for Autism and Communication Disorders: Field-testing an autism-specific screening tool for children 12 to 36 months of age.早期自闭症和沟通障碍筛查:为 12 至 36 个月大的儿童测试一种特定于自闭症的筛查工具。
Autism. 2021 Oct;25(7):2112-2123. doi: 10.1177/13623613211012526. Epub 2021 May 7.
2
A Scoping Review of Health Disparities in Autism Spectrum Disorder.自闭症谱系障碍中的健康差异:范围综述
J Autism Dev Disord. 2017 Nov;47(11):3380-3391. doi: 10.1007/s10803-017-3251-9.
3
Health professionals' views on the barriers and enablers to evidence-based practice for acute stroke care: a systematic review.
南非自闭症导航员起跑至日常活动辅导课程的可行性。
Autism. 2024 Sep;28(9):2232-2243. doi: 10.1177/13623613231223784. Epub 2024 Feb 8.
4
Consistency between parent report and direct assessment of development in toddlers with autism spectrum disorder and other delays: Does sex assigned at birth matter?自闭症谱系障碍和其他发育迟缓幼儿的家长报告与直接评估之间的一致性:出生时的性别是否重要?
Autism Res. 2023 Jun;16(6):1174-1184. doi: 10.1002/aur.2927. Epub 2023 Apr 3.
5
Supervised Approach to Identify Autism Spectrum Neurological Disorder via Label Distribution Learning.基于标签分布学习的孤独症谱系神经发育障碍识别的监督方法
Comput Intell Neurosci. 2022 Aug 27;2022:4464603. doi: 10.1155/2022/4464603. eCollection 2022.
6
A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives.儿科自闭症谱系障碍筛查中报告危害的分类:提供者和家长的观点。
J Autism Dev Disord. 2022 Feb;52(2):647-673. doi: 10.1007/s10803-021-04964-3. Epub 2021 Mar 22.
7
Characterizing Available Tools for Synchronous Virtual Assessment of Toddlers with Suspected Autism Spectrum Disorder: A Brief Report.描述疑似自闭症谱系障碍幼儿同步虚拟评估工具的特点:简要报告。
J Autism Dev Disord. 2022 Jan;52(1):423-434. doi: 10.1007/s10803-021-04911-2. Epub 2021 Feb 19.
8
The influence of choline treatment on behavioral and neurochemical autistic-like phenotype in Mthfr-deficient mice.胆碱治疗对Mthfr基因缺陷小鼠行为和神经化学自闭症样表型的影响。
Transl Psychiatry. 2020 Sep 18;10(1):316. doi: 10.1038/s41398-020-01002-1.
9
Problems in treatment and training of autistic children growing up in China: A follow-up case report.在中国成长的自闭症儿童的治疗与训练问题:一例随访病例报告。
Pediatr Investig. 2020 Jun 24;4(2):138-140. doi: 10.1002/ped4.12200. eCollection 2020 Jun.
10
Multi-method process maps: An interdisciplinary approach to investigate modifications in protocol-driven interventions.多方法流程图:一种用于研究协议驱动干预措施修改的跨学科方法。
J Clin Transl Sci. 2020 Feb 26;4(3):260-269. doi: 10.1017/cts.2020.14.
医疗专业人员对急性中风护理循证实践的障碍与促进因素的看法:一项系统综述
Implement Sci. 2017 Jun 5;12(1):74. doi: 10.1186/s13012-017-0599-3.
4
The Agency for Healthcare Research and Quality and the Development of a Learning Health Care System.医疗保健研究与质量机构以及学习型医疗保健系统的发展。
JAMA Intern Med. 2017 Jul 1;177(7):909-910. doi: 10.1001/jamainternmed.2017.2589.
5
Access Barriers to Services by Immigrant Mothers of Children with Autism in Canada.加拿大自闭症儿童移民母亲获得服务的障碍
Int J Ment Health Addict. 2017;15(2):239-259. doi: 10.1007/s11469-017-9732-4. Epub 2017 Jan 17.
6
Observed and Parent-Report Measures of Social Communication in Toddlers With and Without Autism Spectrum Disorder Across Race/Ethnicity.不同种族/族裔中患有和未患自闭症谱系障碍幼儿的社交沟通观察指标与家长报告指标
Am J Speech Lang Pathol. 2017 May 17;26(2):355-368. doi: 10.1044/2016_AJSLP-15-0089.
7
An Overview of Research and Evaluation Designs for Dissemination and Implementation.传播与实施的研究及评估设计概述
Annu Rev Public Health. 2017 Mar 20;38:1-22. doi: 10.1146/annurev-publhealth-031816-044215.
8
'You are labelled by your children's disability' - A community-based, participatory study of stigma among Somali parents of children with autism living in the United Kingdom.“你因孩子的残疾而被贴上标签”——一项基于社区的、关于居住在英国的索马里自闭症儿童家长所受污名化的参与式研究。
Ethn Health. 2018 Oct;23(7):781-796. doi: 10.1080/13557858.2017.1294663. Epub 2017 Mar 2.
9
Autism Behavioural Interventional Research in low-resource settings: Overcoming prevailing challenges - an Asian perspective.资源匮乏地区的自闭症行为干预研究:克服当前挑战——亚洲视角
Asian J Psychiatr. 2017 Feb;25:224-227. doi: 10.1016/j.ajp.2016.12.004. Epub 2016 Dec 7.
10
Methods for designing interventions to change healthcare professionals' behaviour: a systematic review.设计干预措施以改变医疗保健专业人员行为的方法:一项系统综述。
Implement Sci. 2017 Mar 4;12(1):30. doi: 10.1186/s13012-017-0560-5.