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本文引用的文献

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Integrated narrative assessment exemplification: a leukaemia case history.综合叙述性评估示例:一个白血病病例史
Acta Biomed. 2017 Jul 18;88(3S):13-21. doi: 10.23750/abm.v88i3-S.6609.
2
Integrated narrative nursing: a new perspective for an advanced assessment.整合式叙事护理:高级评估的新视角。
Acta Biomed. 2017 Mar 14;88(1S):7-17. doi: 10.23750/abm.v88i1-S.6279.
3
An integrated narrative nursing model: towards a new healthcare paradigm.一种综合叙事护理模式:迈向新的医疗保健范式。
Acta Biomed. 2016 Nov 22;87(4-S):13-22.
4
Strengthening of palliative care as a component of integrated treatment throughout the life course.加强姑息治疗,将其作为贯穿生命全程综合治疗的一个组成部分。
J Pain Palliat Care Pharmacother. 2014 Jun;28(2):130-4. doi: 10.3109/15360288.2014.911801. Epub 2014 Apr 29.
5
Prevalence and characteristics of patients with advanced chronic conditions in need of palliative care in the general population: a cross-sectional study.一般人群中需要姑息治疗的晚期慢性疾病患者的流行率和特征:一项横断面研究。
Palliat Med. 2014 Apr;28(4):302-11. doi: 10.1177/0269216313518266. Epub 2014 Jan 8.
6
Early identification of palliative care patients in general practice: development of RADboud indicators for PAlliative Care Needs (RADPAC).全科医学中姑息治疗患者的早期识别:制定拉德堡姑息治疗需求指标(RADPAC)。
Br J Gen Pract. 2012 Sep;62(602):e625-31. doi: 10.3399/bjgp12X654597.
7
American Society of Clinical Oncology provisional clinical opinion: the integration of palliative care into standard oncology care.美国临床肿瘤学会临时临床意见:姑息治疗融入标准肿瘤治疗。
J Clin Oncol. 2012 Mar 10;30(8):880-7. doi: 10.1200/JCO.2011.38.5161. Epub 2012 Feb 6.
8
Giving voice to patients' and family caregivers' needs in chronic heart failure: implications for palliative care programs.让慢性心力衰竭患者及其家属的需求发声:对姑息治疗方案的启示。
J Palliat Med. 2011 Dec;14(12):1317-24. doi: 10.1089/jpm.2011.0179. Epub 2011 Nov 22.
9
Evaluation of a new model of short-term palliative care for people severely affected with multiple sclerosis: a randomised fast-track trial to test timing of referral and how long the effect is maintained.评价一种新的针对多发性硬化症重度患者的短期姑息治疗模式:一项随机快速通道试验,旨在检验转诊时机以及疗效维持时间。
Postgrad Med J. 2011 Nov;87(1033):769-75. doi: 10.1136/postgradmedj-2011-130290. Epub 2011 Oct 6.
10
Palliative care for people with dementia.痴呆症患者的姑息治疗。
Br Med Bull. 2010;96:159-74. doi: 10.1093/bmb/ldq024. Epub 2010 Jul 30.

痴呆症背景下的姑息治疗:卫生专业人员对优势与阻力的观点

The palliative care in dementia context: health professionals point of view about advantages and resistances.

作者信息

Zapponi Sabina, Ascari Maria Chiara, Feracaku Erjona, Masin Silvia, Paglia Paola, Petroccione Roberta, Pinzaru Ana, Foà Chiara, Artioli Giovanna, Sarli Leopoldo

机构信息

Università di Parma.

.

出版信息

Acta Biomed. 2018 Mar 26;89(4-S):45-54. doi: 10.23750/abm.v89i4-S.7198.

DOI:10.23750/abm.v89i4-S.7198
PMID:29644989
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6357632/
Abstract

BACKGROUND AND AIM

The 38/2010 law has expanded the provision of palliative care to patients with chronic-degenerative diseases. The ISTAT data show that 60% of the dying population is suffering from these diseases and could, according to the literature review, benefit particularly from such treatments. This study investigates the point of view of healthcare professionals, working in the context of dementia, regarding the knowledge and application of palliative care in the field of dementia. The focus is on the analysis of the resistance that may prevent the spread of palliative care, slowing the application of such care in different settings of terminality.

METHODS

The method is a qualitative phenomenological approach. A grid of semi-structured interviews was created and was proposed to 33 health workers (18 women) who work in Health Centres or in the Alzheimer Nucleus of Northern Italy.

RESULTS

Most operators think they understand palliative care, they believe it to be useful and necessary, but often only connect it with terminal illness. Others have a broader vision based on a more abstract and theoretical level than on real practical knowledge. A majority of respondents think that the spread of palliative care is slow and difficult because of the prevalence of the biomedical model that holistically and prejudicially hinders the introduction of new models.

CONCLUSION

Appropriate training is the fundamental key to overcoming resistance. The professionals interviewed showed that they were aware of their lack of knowledge and declared that they had little competence in managing the complexity of long-term pathologies.

摘要

背景与目的

2010年第38号法律扩大了对慢性退行性疾病患者的姑息治疗范围。意大利国家统计局的数据显示,60%的临终人群患有这些疾病,根据文献综述,他们可能尤其能从这类治疗中受益。本研究调查了在痴呆症背景下工作的医护人员对痴呆症领域姑息治疗知识及应用的看法。重点在于分析可能阻碍姑息治疗推广、减缓其在不同临终环境中应用的阻力。

方法

采用定性现象学方法。创建了一个半结构化访谈提纲,并向在意大利北部健康中心或阿尔茨海默病中心工作的33名医护人员(18名女性)提出。

结果

大多数从业者认为他们理解姑息治疗,认为其有用且必要,但往往仅将其与晚期疾病联系起来。其他人有更宽泛的认识,基于更抽象的理论层面而非实际的实践知识。大多数受访者认为,由于生物医学模式的盛行从整体上和偏见上阻碍了新模式的引入,姑息治疗的推广缓慢且困难。

结论

适当的培训是克服阻力的关键。接受访谈的专业人员表明,他们意识到自己知识的欠缺,并宣称自己在处理长期病症的复杂性方面能力不足。