Nicholls Wendy, Selvey Linda A, Harper Craig, Persson Martin, Robinson Suzanne
1 Princess Margaret Hospital Dental/Cleft Lip and Palate Unit, Perth, Western Australia, Australia.
2 Curtin University, Perth, Western Australia, Australia.
Cleft Palate Craniofac J. 2019 Feb;56(2):210-221. doi: 10.1177/1055665618769660. Epub 2018 Apr 12.
Management of a cleft of the lip and/or palate (CL/P) involves a multidisciplinary team approach lasting from birth to potentially postskeletal maturity. This condition is complex, with both medical and psychosocial implications that may place individuals with a cleft at higher risk of developing psychosocial problems.
A self-administered questionnaire was completed by a sample from the Western Australian cleft population comprising 3 age groups: child (n = 100), adolescent (n = 101), and adult (n = 158).
Public speaking, being photographed, special relationships, and participation in school were identified as the areas most impacted by having a cleft. Hearing and speech were reported to have a higher importance than facial and dental appearance. Participants rated support given to them by their parents as the most important, with high ratings for treatment providers. For teasing, the impact of cleft was significantly higher among participants with cleft lip and palate for both the adolescent and adult age groups. There was little significant difference by gender across the variables, which suggests that males are just as likely to require support as females.
The impact of a cleft across multiple psychosocial domains needs to be recognized and addressed as part of craniofacial team care across age groups.
唇腭裂（CL/P）的治疗需要多学科团队参与，从出生到骨骼发育成熟后都可能需要持续关注。这种情况较为复杂，具有医学和心理社会方面的影响，可能使唇腭裂患者出现心理社会问题的风险更高。
一份自填式问卷由来自西澳大利亚唇腭裂人群的样本完成，该样本包括三个年龄组：儿童（n = 100）、青少年（n = 101）和成人（n = 158）。
公开演讲、拍照、特殊关系以及在学校的参与情况被确定为受唇腭裂影响最大的领域。据报告，听力和言语比面部和牙齿外观更为重要。参与者将父母给予的支持评为最重要的，对治疗提供者的评价也很高。对于被取笑，唇腭裂对青少年和成人年龄组中唇腭裂患者的影响明显更高。各变量在性别上几乎没有显著差异，这表明男性与女性一样可能需要支持。
唇腭裂在多个心理社会领域的影响需要被认识到，并作为跨年龄组颅面团队护理的一部分加以解决。
