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应对方式和慢性健康状况对儿童和青少年健康相关生活质量的影响。

The impact of coping patterns and chronic health conditions on health-related quality of life among children and adolescents.

机构信息

School of Behavioral Sciences, The Academic College of Tel Aviv-Yaffo, Tel Aviv-Yaffo, Jaffa, Israel.

Schneider Children's Medical Center of Israel, Petach Tikva, Israel.

出版信息

Eur J Pediatr. 2018 Jun;177(6):935-943. doi: 10.1007/s00431-018-3146-6. Epub 2018 Apr 14.

Abstract

UNLABELLED

This study examined the relationship among chronic disease, coping strategy patterns, and health-related quality of life (HRQOL) among children and adolescents. The cohort included 273 Israeli children and adolescents aged 8-18 years diagnosed with asthma, diabetes mellitus, or celiac disease. All completed the Coping with a Disease Questionnaire (CODI) and the DISABKIDS Chronic Generic Measure (DCGM-37). The outcome measures were as follows: association of the use of effective and non-effective coping strategies with type of disease; predictive value of coping patterns for health-related quality of life; a European sample was used for comparison. On k means cluster analysis, three strategy patterns (two "effective" and one "non-effective") were associated with health-related quality of life and disease specifics. Disease predicted coping patterns, but it had a weak direct relationship to health-related quality of life. Coping patterns were the strongest predictor of health-related quality of life. These results are similar to the European DISABKIDS study, indicating cross-cultural parallels.

CONCLUSIONS

The findings highlight the power of the concept of coping patterns as opposed to coping strategies to explain HRQOL of children and adolescents with chronic disease. Both types of disease (categorical approach) and coping patterns (non-categorical approach) are relevant to predicting HRQOL. What is Known: • The literature on coping has widely documented the existence of individual (unique) coping strategies. • Coping strategies are considered "useful" or "non-useful," based on whether they increase or decrease negative outcomes caused by certain stressors, such as chronic illness. What is New: • Our findings suggest that youngsters can use "non-useful" strategies to reduce stress caused by chronic illness, while still maintaining higher quality of life, as long as they also apply certain "useful" strategies. • The use of certain combinations of coping strategies, rather than single strategies, is more important to our understanding of how coping affects HRQOL of children with chronic disease.

摘要

未加标签

本研究考察了慢性病、应对策略模式与儿童和青少年健康相关生活质量(HRQOL)之间的关系。该队列包括 273 名 8-18 岁的以色列儿童和青少年,他们被诊断患有哮喘、糖尿病或乳糜泻。所有人都完成了疾病应对问卷(CODI)和 DISABKIDS 慢性通用测量表(DCGM-37)。以下是评估指标:有效和无效应对策略的使用与疾病类型的关联;应对模式对健康相关生活质量的预测价值;采用了欧洲样本进行比较。通过 k 均值聚类分析,三种策略模式(两种“有效”和一种“无效”)与健康相关生活质量和疾病特异性相关。疾病预测应对模式,但与健康相关生活质量仅有微弱的直接关系。应对模式是健康相关生活质量的最强预测因素。这些结果与欧洲 DISABKIDS 研究相似,表明存在跨文化相似性。

结论

研究结果强调了应对模式概念的力量,而不是应对策略,以解释患有慢性病的儿童和青少年的 HRQOL。两种类型的疾病(分类方法)和应对模式(非分类方法)都与预测 HRQOL 相关。

已知内容

•文献广泛记录了个体(独特)应对策略的存在。•应对策略被认为是“有用”或“无用”,这取决于它们是否增加或减少由某些压力源(如慢性疾病)引起的负面后果。

新内容

•我们的研究结果表明,只要年轻人还使用某些“有用”策略,他们就可以使用“无用”策略来减轻慢性疾病引起的压力,同时仍保持较高的生活质量。•应对策略的某些组合的使用,而不是单一策略的使用,对我们理解应对如何影响患有慢性疾病的儿童的 HRQOL 更为重要。

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