Department of Health Sciences, Lund University, Lund, Sweden.
Department of Neurology and Rehabilitation, Skåne University Hospital, Lund, Sweden.
Acta Neurol Scand. 2018 Jul;138(1):70-77. doi: 10.1111/ane.12942. Epub 2018 Apr 16.
This study aimed to investigate how the use and perceived unmet need of mobility devices (MD) in people with Parkinson's disease (PD) evolve over a 3-year period.
The study reports baseline assessments (n = 255) and comparisons for participants with complete data at baseline and the 3-year follow-up (n = 165). Structured questions addressed the use and perceived unmet need of various MDs indoor and outdoor (eg, canes, wheeled walkers, and manual and powered wheelchairs). McNemar tests were used to investigate differences over time.
In the total sample at baseline, 30% and 52% of the participants reported using MDs indoors and outdoors, respectively. Among those with complete data also at the 3-year follow-up, the proportion of participants using MDs increased significantly (P < .001) from 22% to 40% for indoors and from 48% to 66% for outdoors, with transition of MD toward more assistive potential (ie, wheeled walker and manual wheelchair). Wheeled walkers were the most commonly used MD indoors as well as outdoors on both occasions. Among the users of multiple MDs, the most common combination was cane and wheeled walker on both occasions. The proportion of participants who reported a perceived unmet need of MDs was 5% at baseline, whereas it was 21%, 3 years later.
The use and perceived unmet need of MDs in people with PD increase over time. There is a need for addressing MDs at clinical follow-ups of people with PD, with continuous attention in primary health care and municipality contexts.
本研究旨在调查帕金森病（PD）患者在 3 年内移动设备（MD）的使用情况和感知未满足需求如何变化。
本研究报告了基线评估（n=255）和具有完整基线及 3 年随访数据的参与者的比较（n=165）。结构化问题涉及室内和室外（如手杖、轮式助行器、手动和动力轮椅）各种 MD 的使用和感知未满足需求。采用 McNemar 检验来研究随时间的差异。
在基线时的总样本中，分别有 30%和 52%的参与者报告在室内和室外使用 MD。在具有完整数据且也在 3 年随访的参与者中，使用 MD 的比例显著增加（P<0.001），从室内的 22%增加到 40%，从室外的 48%增加到 66%，MD 向更具辅助潜力（即轮式助行器和手动轮椅）转变。轮式助行器是室内以及两次随访时最常用的 MD。在使用多种 MD 的参与者中，最常见的组合是手杖和轮式助行器。报告 MD 感知未满足需求的参与者比例在基线时为 5%，而 3 年后为 21%。
PD 患者 MD 的使用和感知未满足需求随时间增加。在 PD 患者的临床随访中需要关注 MD，并在初级保健和市政厅背景下持续关注。
