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关节炎性银屑病患者的生活质量。

Quality of life in psoriatic arthritis.

机构信息

a Research Center of Rheumatic Diseases , Sf Maria Hospital, University of Medicine and Pharmacy Carol Davila , Bucharest , Romania.

b Department of Rheumatology , Sorbonne Université, Institut Pierre Louis d'Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital , Paris , France.

出版信息

Expert Rev Clin Immunol. 2018 May;14(5):405-417. doi: 10.1080/1744666X.2018.1468252. Epub 2018 Apr 30.

Abstract

Psoriatic arthritis (PsA) is a multi-organ chronic inflammatory disease which impacts patients both physically and psychologically. The highest priority for patients goes to pain relief, but also to ability to function and participate in social life, fatigue, and psychological distress. Areas covered: In the present article, we will review current knowledge on impairments of health-related quality of life related to PsA, as well as patient priorities and patient-reported outcome measures such as the PsA Impact of Disease or the PsA Quality of Life questionnaires. The impact of PsA appears to be very broad, covering all aspects of life, i.e. activities and participation, physical and emotional aspects, but also domains such as fatigue, coping or sleep disturbance. Some of these aspects which are important for PsA patients have been included in the recently updated PsA Core Domain Set to be reported in clinical studies. Expert commentary: A better understanding of quality of life issues faced by patients with PsA could improve patient-physician communication and ultimately, quality of care. QoL is altered in PsA due both to the physical impact, but also the psychological impact of this disease. Several scores are available to better assess these aspects of PsA.

摘要

银屑病关节炎(PsA)是一种多器官慢性炎症性疾病,会对患者的身体和心理造成影响。患者最关心的是缓解疼痛,其次是身体机能、参与社会生活、疲劳和心理困扰。涵盖领域:本文将综述与银屑病关节炎相关的健康相关生活质量受损,以及患者的优先事项和患者报告的结果测量指标,如疾病对银屑病关节炎的影响或银屑病关节炎生活质量问卷。银屑病关节炎的影响似乎非常广泛,涵盖了生活的各个方面,即活动和参与、身体和情绪方面,还包括疲劳、应对或睡眠障碍等领域。这些对银屑病关节炎患者很重要的方面已被纳入最近更新的银屑病关节炎核心领域集,以在临床研究中报告。专家评论:更好地了解银屑病关节炎患者面临的生活质量问题可以改善医患沟通,并最终提高护理质量。由于疾病的身体影响和心理影响,银屑病关节炎患者的生活质量发生了改变。有几种评分可用于更好地评估银屑病关节炎的这些方面。

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