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银屑病关节炎的心理社会负担。

The psychosocial burden of psoriatic arthritis.

机构信息

Cleveland Clinic, Main Campus, 9500 Euclid Ave, Cleveland, OH 44195.

Brigham and Women׳s Hospital and Harvard Medical School, Boston, MA.

出版信息

Semin Arthritis Rheum. 2017 Dec;47(3):351-360. doi: 10.1016/j.semarthrit.2017.05.010. Epub 2017 May 20.

Abstract

OBJECTIVE

To assess the psychosocial impact of psoriatic arthritis (PsA), describe how health-related quality of life (QoL) is affected in patients with PsA, discuss measures used to evaluate the psychosocial impact of PsA, and review studies examining the effect of therapy on QoL.

METHODS

A targeted review on the impact of PsA on QoL and the role of tailored psychosocial management in reducing the psychosocial burden of the disease was performed. PubMed literature searches were conducted using the terms PsA, psychosocial burden, QoL, and mood/behavioral changes. Articles were deemed relevant if they presented information regarding the psychosocial impact of PsA, methods used to evaluate these impacts, or ways to manage/improve management of PsA and its resulting comorbidities. The findings of this literature search are descriptively reviewed and the authors׳ expert opinion on their interpretation is provided.

RESULTS

The psychosocial burden of PsA negatively affects QoL. Patients suffer from sleep disorders, fatigue, low-level stress, depression and mood/behavioral changes, poor body image, and reduced work productivity. Additionally, each patient responds to pain differently, depending on a variety of psychological factors including personality structure, cognition, and attention to pain. Strategies for evaluating the burdens associated with PsA and the results of properly managing patients with PsA are described.

CONCLUSIONS

PsA is associated with a considerable psychosocial burden and new assessment tools, specific to PsA, have been developed to help quantify this burden in patients. Future management algorithms of PsA should incorporate appropriate assessment and management of psychological and physical concerns of patients. Furthermore, patients with PsA should be managed by a multidisciplinary team that works in coordination with the patient and their family or caregivers.

摘要

目的

评估银屑病关节炎(PsA)的心理社会影响,描述 PsA 患者的健康相关生活质量(QoL)如何受到影响,讨论用于评估 PsA 心理社会影响的措施,并综述研究治疗对 QoL 的影响。

方法

对 PsA 对 QoL 的影响以及量身定制的心理社会管理在减轻疾病心理社会负担中的作用进行了有针对性的综述。使用 PsA、心理社会负担、QoL 和情绪/行为改变等术语对 PubMed 文献进行了检索。如果文章提供了有关 PsA 的心理社会影响、评估这些影响的方法或管理/改善 PsA 及其相关并发症管理的信息,则认为其具有相关性。对该文献检索的结果进行描述性综述,并提供作者对其解释的专家意见。

结果

PsA 的心理社会负担对 QoL 产生负面影响。患者患有睡眠障碍、疲劳、低水平压力、抑郁和情绪/行为改变、身体形象不佳和工作效率降低。此外,每个患者对疼痛的反应都不同,这取决于多种心理因素,包括个性结构、认知和对疼痛的关注。描述了用于评估与 PsA 相关的负担的策略以及正确管理 PsA 患者的结果。

结论

PsA 与相当大的心理社会负担相关,已经开发出专门针对 PsA 的新评估工具来帮助量化患者的负担。未来的 PsA 管理算法应纳入对患者心理和身体问题的适当评估和管理。此外,应通过与患者及其家属或护理人员协调工作的多学科团队来管理患有 PsA 的患者。

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