Petranek Stefan, Pencek Jennifer, Dey Mahua
Herron School of Art & Design, Indiana University-Purdue University Indianapolis, Indianapolis, IN 46202, USA.
Department of Neurosurgery, Indiana University, Simon Cancer Center, Indianapolis, IN 46202, USA.
Behav Sci (Basel). 2018 Apr 27;8(5):43. doi: 10.3390/bs8050043.
With the evolution of modern medical treatment strategies, there also comes the realization that many times we reach a point where traditional goals of medical care, such as overall survival or disease-free survival, are not realistic goals for many patients facing devastating illnesses. One such disease is malignant primary brain tumors, known as malignant glioma (MG). With median survival of only 20.9 months following best available standard of care treatment strategies, including surgery, chemotherapy, radiation, and tumor treating fields, MG is one of the deadliest malignancies of the modern era. Along the course of treating patients with MG, clinicians often realize that traditional treatment therapies can at best provide incremental benefit of symptom management without any survival benefit. However, even in these difficult situations, it is possible to make significant positive changes in patients’ health-related quality of life (HRQoL) using creative, non-traditional interventions. In this paper, we describe the initial findings from our project that takes a unique approach to studying the intersections of clinical care and art by using pet therapy and art-making as interventions for patients diagnosed with brain tumors. Our preliminary findings suggest that pet therapy and the ability to reflect as well as speak about their journey through a life-altering disease significantly increases patients’ overall feeling of wellbeing and reduces anxiety about future uncertainty.
随着现代医疗治疗策略的演变,人们也逐渐意识到,在很多情况下,对于许多面临毁灭性疾病的患者来说,传统的医疗护理目标,如总生存期或无病生存期,并非现实可行的目标。恶性原发性脑肿瘤就是这样一种疾病,即恶性胶质瘤(MG)。在采用包括手术、化疗、放疗和肿瘤治疗电场等最佳可用标准护理治疗策略后,MG的中位生存期仅为20.9个月,它是现代最致命的恶性肿瘤之一。在治疗MG患者的过程中,临床医生常常意识到,传统治疗方法充其量只能在症状管理方面提供渐进性益处,而无法带来生存获益。然而,即便在这些困难情况下,通过创造性的非传统干预措施,仍有可能使患者的健康相关生活质量(HRQoL)发生显著积极的变化。在本文中,我们描述了我们项目的初步研究结果,该项目采用独特方法,通过将宠物疗法和艺术创作作为对被诊断患有脑肿瘤患者的干预措施,来研究临床护理与艺术的交叉点。我们的初步研究结果表明,宠物疗法以及反思并讲述自己经历改变人生疾病历程的能力,能显著提升患者的整体幸福感,并减轻对未来不确定性的焦虑。