Department of Nursing Science, University of Turku, Turku, Finland.
Department of Pediatrics, Turku University Hospital and University of Turku, Turku, Finland.
Acta Paediatr. 2018 Dec;107(12):2100-2108. doi: 10.1111/apa.14386. Epub 2018 May 29.
We explored the dynamics of neonatologist-parent communication and decision-making during medical rounds in a level three neonatal intensive care unit.
This was a qualitative study, with an ethnographic approach, that was conducted at Turku University Hospital, Finland, from 2013 to 2014. We recruited eight mothers and seven couples, their 11 singletons and four sets of twins and two neonatologists and observed and video recorded 15 medical rounds. The infants were born at 23 + 5 to 40 + 1 weeks, and the parents were aged 24-47. The neonatologists and parents were interviewed separately after the rounds.
Four patterns of interaction emerged. The collaborative pattern was most consistent, with the ideal of shared decision-making, as the parents' preferences were genuinely and visibly integrated into the treatment decisions. In the neonatologist-led interactional pattern, the decision-making process was only somewhat inclusive of the parents' observations and preferences. The remaining two patterns, emergency and disconnected, were characterised by a paternalistic decision-making model where the parents' observations and preferences had minimal to no influence on the communication or decision-making.
The neonatologists played a central role in facilitating parental participation and their interaction during medical rounds were characterised by the level of parent participation in decision-making.
我们探讨了三级新生儿重症监护病房中新生儿科医生与家长在医疗查房期间的沟通和决策动态。
这是一项定性研究,采用民族志方法,于 2013 年至 2014 年在芬兰图尔库大学医院进行。我们招募了 8 位母亲和 7 对夫妇、他们的 11 位单胞胎和 4 对双胞胎以及 2 位新生儿科医生,并观察和视频记录了 15 次医疗查房。婴儿的胎龄为 23+5 周至 40+1 周,父母年龄为 24-47 岁。查房后,新生儿科医生和家长分别接受了访谈。
出现了四种互动模式。协作模式最为一致,体现了共同决策的理想,因为父母的偏好真正且明显地融入了治疗决策。在以新生儿科医生为主导的互动模式中,决策过程只是在一定程度上包含了父母的观察和偏好。其余两种模式,即紧急模式和脱节模式,其特点是家长的观察和偏好对沟通或决策几乎没有影响,决策过程呈现出家长主义的模式。
新生儿科医生在促进家长参与方面发挥了核心作用,他们在医疗查房期间的互动特点是家长参与决策的程度。