Choi JiYeon, Lingler Jennifer H, Donahoe Michael P, Happ Mary Beth, Hoffman Leslie A, Tate Judith A
Department of Acute and Tertiary Care, University of Pittsburgh, School of Nursing, Pittsburgh, PA, USA; Yonsei University College of Nursing, Seoul, Republic of Korea.
Department of Health and Community Systems, University of Pittsburg, School of Nursing, Pittsburgh, PA, USA.
Heart Lung. 2018 Jul-Aug;47(4):401-407. doi: 10.1016/j.hrtlng.2018.04.003. Epub 2018 May 3.
Few studies have longitudinally explored the experience and needs of family caregivers of ICU survivors after patients' home discharge.
Qualitative content analysis of interviews drawn from a parent study that followed family caregivers of adults ICU survivors for 4 months post-ICU discharge.
Family caregivers (n = 20, all white, 80% woman) viewed home discharge as positive progress, but reported having insufficient time to transition from family visitor to the active caregiver role. Caregivers expressed feelings of relief during the steady recovery of family members' physical and cognitive function. However, the slow pace of improvement conflicted with their expectations. Even after patients achieved independent physical function, emotional needs persisted and these issues contributed to caregivers' anxiety, worry, and view that recovery was incomplete.
Family caregivers of ICU survivors need information and skills to help managing patients' care needs, pacing expectations with actual patients' progress, and caregivers' health needs.
很少有研究纵向探讨重症监护病房（ICU）幸存者出院回家后家庭照顾者的经历和需求。
对一项母研究中的访谈进行定性内容分析，该母研究对成年ICU幸存者的家庭照顾者在ICU出院后随访了4个月。
家庭照顾者（n = 20，均为白人，80%为女性）将出院视为积极进展，但报告称没有足够时间从家庭访客转变为积极的照顾者角色。在家庭成员身体和认知功能稳步恢复期间，照顾者表达了宽慰之情。然而，改善的缓慢速度与他们的期望相冲突。即使患者实现了独立的身体功能，情感需求仍然存在，这些问题导致照顾者焦虑、担忧，并认为恢复不完全。
ICU幸存者的家庭照顾者需要信息和技能，以帮助管理患者的护理需求、根据患者的实际进展调整期望，以及照顾者自身的健康需求。
