Omura Jaclyn, Fuentes Molly, Bjornson Kristie
Department of Rehabilitation Medicine, Seattle Children's Hospital and University of Washington School of Medicine, 4800 Sandpoint Way NE, M/S OB.8.410, Seattle, WA 98105(∗).
Department of Rehabilitation Medicine, Seattle Children's Hospital, University of Washington School of Medicine, and Seattle Children's Research Institute, Seattle, WA(†).
PM R. 2018 Nov;10(11):1185-1191. doi: 10.1016/j.pmrj.2018.05.010. Epub 2018 May 18.
Cerebral palsy (CP) is a chronic condition that affects children and has an impact on social and physical activity, as well as participation in daily life. Participation and quality of life (QOL) are 2 important measures of successful rehabilitation that have not been well studied in children with CP.
To report levels of participation and examine the relationship of participation to QOL in ambulatory children with CP.
Secondary analysis, cross-sectional cohort study.
Regional pediatric specialty care center.
A cohort of 128 ambulatory children with CP, Gross Motor Function Classification System levels I-III, age 2-9 years.
Not applicable.
Pediatric Quality of Life Inventory; Assessment of Life Habits; and Children's Assessment of Participation and Enjoyment and Assessment of Preschool Children's Participation.
Participation was negatively associated with increasing Gross Motor Function Classification System but not age. Level of participation was associated with psychosocial QOL (2.97, P = .001) and total QOL (54.70, P = .03) but not physical QOL. There was a positive relationship between physical activity performance (0.63, P = .001), walking performance (0.002, P = .01), and communication level (7.23, P = .05) with physical QOL. Increasing age and decreased frequency of participation were negatively associated with all QOL domains.
The results suggest that participation in daily life is negatively influenced by physical impairment and that levels of participation are positively associated with psychosocial and total QOL among ambulatory children with CP. This suggests that participation influences QOL and further studies are needed to determine the aspects of participation directly impacting QOL in ambulatory children with CP.
III.
脑瘫（CP）是一种影响儿童的慢性疾病，对社交和身体活动以及日常生活参与度均有影响。参与度和生活质量（QOL）是成功康复的两个重要指标，但在脑瘫儿童中尚未得到充分研究。
报告能行走的脑瘫儿童的参与度水平，并探讨参与度与生活质量之间的关系。
二次分析、横断面队列研究。
地区儿科专科护理中心。
128名能行走的脑瘫儿童队列，粗大运动功能分类系统为I-III级，年龄2至9岁。
不适用。
儿童生活质量量表；生活习惯评估；儿童参与和享受评估以及学龄前儿童参与评估。
参与度与粗大运动功能分类系统等级增加呈负相关，但与年龄无关。参与度水平与心理社会生活质量（2.97，P = 0.001）和总体生活质量（54.70，P = 0.03）相关，但与身体生活质量无关。身体活动表现（0.63，P = 0.001）、行走表现（0.002，P = 0.01）和沟通水平（7.23，P = 0.05）与身体生活质量呈正相关。年龄增长和参与频率降低与所有生活质量领域均呈负相关。
结果表明，身体损伤对日常生活参与度有负面影响，而能行走的脑瘫儿童的参与度水平与心理社会和总体生活质量呈正相关。这表明参与度会影响生活质量，需要进一步研究以确定直接影响能行走的脑瘫儿童生活质量的参与度方面。
III级。
