Khanali Mojen Leila, Rassouli Maryam, Eshghi Peyman, Zendedel Kazem, Akbari Sari Ali, Heravi Karimooi Majideh, Tahmasebi Mamak, Shirin Abadi Farahani Azam
Department of Pediatric Nursing, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences, Tehran, Iran. Email:
Asian Pac J Cancer Prev. 2018 May 26;19(5):1303-1311. doi: 10.22034/APJCP.2018.19.5.1303.
Background: Establishing palliative care services is a priority in the health system of Iran. Considering the necessity of integrating these services into the health system, this study aimed to explore the stakeholders’ perceptions about the provision of a conceptual framework for palliative care services for children with cancer according to the health system in of Iran. Methods: The present qualitative study was conducted through in-depth semi-structured interviews held with 29 participants including palliative care specialists, policy-makers, health care providers, the parents of children with cancer selected through purposive sampling, between August 2016 and February 2017. Interviews continued until saturation of data. All interviews were recorded, transcribed and analyzed using MAXQDA10 software. Results: The codes extracted from interviews produced the main theme “ classes of palliative care services” with the two main categories “comprehensive care” including, strengthening family shelter, maintaining the child in a familiar environment, achieving stability and “establishing social justice” including, easy access to services, financial relief and quality care. Conclusion: Presenting a framework based on level of palliative care services, the findings of this study paves the way for integrating these services into Iranian health system.
建立姑息治疗服务是伊朗卫生系统的一项优先事项。鉴于将这些服务纳入卫生系统的必要性,本研究旨在根据伊朗卫生系统,探讨利益相关者对为癌症患儿提供姑息治疗服务概念框架的看法。方法:本定性研究于2016年8月至2017年2月期间,通过对29名参与者进行深入的半结构化访谈开展,这些参与者包括姑息治疗专家、政策制定者、医疗服务提供者,以及通过目的抽样选取的癌症患儿家长。访谈持续进行直至数据饱和。所有访谈均进行录音、转录,并使用MAXQDA10软件进行分析。结果:从访谈中提取的代码产生了主要主题“姑息治疗服务类别”,其中包括两个主要类别,“综合护理”,包括加强家庭庇护、让孩子保持在熟悉的环境中、实现稳定,以及“建立社会正义”,包括易于获得服务、经济救济和优质护理。结论:本研究结果基于姑息治疗服务水平提出了一个框架,为将这些服务纳入伊朗卫生系统铺平了道路。