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从患者和医疗保健专业人员角度对澳大利亚和英国人工耳蜗植入行为和态度反应的定性多方法研究:研究方案

Qualitative, multimethod study of behavioural and attitudinal responses to cochlear implantation from the patient and healthcare professional perspective in Australia and the UK: study protocol.

作者信息

Rapport Frances, Bierbaum Mia, McMahon Catherine, Boisvert Isabelle, Lau Annie, Braithwaite Jeffrey, Hughes Sarah

机构信息

Australian Institute of Health Innovation, Macquarie University, Sydney, New South Wales, Australia.

Macquarie University Centre for Implementation of Hearing Research, Sydney, New South Wales, Australia.

出版信息

BMJ Open. 2018 May 29;8(5):e019623. doi: 10.1136/bmjopen-2017-019623.

Abstract

INTRODUCTION

The growing prevalence of adults with 'severe or greater' hearing loss globally is of great concern, with hearing loss leading to diminished communication, and impacting on an individual's quality of life (QoL). Cochlear implants (CI) are a recommended device for people with severe or greater, sensorineural hearing loss, who obtain limited benefits from conventional hearing aids (HA), and through improved speech perception, CIs can improve the QoL of recipients. Despite this, utilisation of CIs is low.

METHODS AND ANALYSIS

This qualitative, multiphase and multimethod dual-site study (Australia and the UK) explores patients' and healthcare professionals' behaviours and attitudes to cochlear implantation. Participants include general practitioners, audiologists and older adults with severe or greater hearing loss, who are HA users, CI users and CI candidates. Using purposive time frame sampling, participants will be recruited to take part in focus groups or individual interviews, and will each complete a demographic questionnaire and a qualitative proforma. The study aims to conduct 147 data capture events across a sample of 49 participants, or until data saturation occurs. Schema and thematic analysis with extensive group work will be used to analyse data alongside reporting of demographic and participant characteristics.

ETHICS AND DISSEMINATION

Ethics approval for this study was granted by Macquarie University (HREC: 5201700539), and the study will abide by Australian National Health and Medical Research Council ethical guidelines. Study findings will be published through peer-reviewed journal articles, and disseminated through public and academic conference presentations, participant information sheets and a funders' final report.

摘要

引言

全球范围内患有“重度及以上”听力损失的成年人数量日益增加,这令人深感担忧,因为听力损失会导致沟通障碍,并影响个人生活质量(QoL)。人工耳蜗(CI)是推荐给重度及以上感音神经性听力损失患者的一种设备,这些患者从传统助听器(HA)中获得的益处有限,而通过改善言语感知,人工耳蜗可以提高接受者的生活质量。尽管如此,人工耳蜗的使用率仍然很低。

方法与分析

这项定性、多阶段和多方法的双地点研究(澳大利亚和英国)探讨了患者和医疗保健专业人员对人工耳蜗植入的行为和态度。参与者包括全科医生、听力学家以及患有重度及以上听力损失的老年人,他们分别是助听器使用者、人工耳蜗使用者和人工耳蜗植入候选人。采用目的时间框架抽样法,招募参与者参加焦点小组或个人访谈,每位参与者都要完成一份人口统计学问卷和一份定性表格。该研究旨在对49名参与者进行147次数据采集活动,或者直至数据饱和。将使用带有大量小组工作的模式和主题分析来分析数据,并同时报告人口统计和参与者特征。

伦理与传播

本研究已获得麦考瑞大学的伦理批准(人类研究伦理委员会:5201700539),该研究将遵循澳大利亚国家卫生与医学研究委员会的伦理准则。研究结果将通过同行评审的期刊文章发表,并通过公开和学术会议报告、参与者信息表以及资助者的最终报告进行传播。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/72f7/5988079/70153da3a13a/bmjopen-2017-019623f01.jpg

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