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鉴定晚期结肠癌患者的合作伙伴所拥有的资源和技能:一项定性研究。

Identification of resources and skills developed by partners of patients with advanced colon cancer: a qualitative study.

机构信息

Centres Georges Chevrier UMR 7366 CNRS-Univ. Bourgogne Franche-Comte, Dijon, France.

IREPS BFC, 21000, Dijon, France.

出版信息

Support Care Cancer. 2018 Dec;26(12):4121-4131. doi: 10.1007/s00520-018-4283-1. Epub 2018 Jun 5.

Abstract

PURPOSE

Family caregivers play an important role in caring for patients with advanced cancer. To become competent, individuals must draw on and mobilise an adequate combination of resources. Our goal was to identify the skills developed by caregivers of patients with advanced cancer and the associated resources mobilised. We chose to do it with partners of patients with colon cancer.

METHODS

The study used a cross-sectional qualitative design based on 20 individual interviews and a focus group. Partners were recruited from patients treated in three hospitals of France. Semi-structured interviews were conducted until data saturation was achieved. Each interview was transcribed verbatim, and thematic analyses were performed to extract significant themes and subthemes.

RESULTS

Results from the individual and focus group interviews showed that the skills implemented by the partners (in domains of social relationships and health, domestic, organisational, emotional and well-being dimensions) were singular constructs, dependant on if resources (personal, external and schemes) may have been missing and insufficient. In addition, partners may have had these resources but not mobilised them.

CONCLUSION

The identification of the skills and associated resources could allow healthcare professionals better identifying and understanding of the difficulties met by partners in taking care of patients. This could enable them to offer appropriate support to help the caregivers in their accompaniment.

摘要

目的

家庭护理人员在照顾晚期癌症患者方面发挥着重要作用。为了能够胜任,他们必须利用和调动足够的资源。我们的目标是确定照顾晚期癌症患者的护理人员所具备的技能以及所调动的相关资源。我们选择与结肠癌患者的伴侣一起进行这项研究。

方法

该研究采用了基于 20 个个体访谈和一个焦点小组的横断面定性设计。从法国的三家医院治疗的患者中招募了伴侣。进行半结构化访谈,直到达到数据饱和。每次访谈都进行逐字转录,并进行主题分析以提取重要的主题和子主题。

结果

个体访谈和焦点小组访谈的结果表明,伴侣实施的技能(在社会关系和健康、家庭、组织、情感和福祉方面)是单一的结构,取决于是否缺少和不足资源(个人、外部和计划)。此外,伴侣可能拥有这些资源,但并未调动它们。

结论

确定技能和相关资源可以使医疗保健专业人员更好地识别和理解伴侣在照顾患者时遇到的困难。这可以使他们提供适当的支持,帮助护理人员进行陪伴。

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