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疲劳评估量表:在结节病和其他疾病中的质量和可用性。

The Fatigue Assessment Scale: quality and availability in sarcoidosis and other diseases.

机构信息

ILD care foundation research team, Ede.

Faculty of Medicine, Utrecht University, Utrecht.

出版信息

Curr Opin Pulm Med. 2018 Sep;24(5):495-503. doi: 10.1097/MCP.0000000000000496.

DOI:10.1097/MCP.0000000000000496
PMID:29889115
Abstract

PURPOSE OF REVIEW

Fatigue is a problem experienced by many patients suffering from chronic diseases, including sarcoidosis patients. It has a substantial influence on patients' quality of life (QoL). It is, therefore, important to properly assess fatigue with a valid and reliable measure. The Fatigue Assessment Scale (FAS) is the only validated self-reporting instrument classifying fatigue in sarcoidosis. The aim of this review was to examine the psychometric properties of the FAS and the diseases and languages in which it has been used. Studies among sarcoidosis patients were also reviewed in terms of outcomes.

RECENT FINDINGS

Studies were identified by searching the electronic bibliographic database Pubmed. Search terms used were: FAS and fatigue. Articles were included in the review if the FAS had been used to assess fatigue.

RESULTS

Since its introduction, the FAS was used in 26 different diseases or conditions, including stroke, neurologic disorders, rheumatoid arthritis, idiopathic pulmonary fibrosis and sarcoidosis. Its reliability and validity have proved to be good. Unidimensionality has been established. So far, the FAS is available in 20 languages and widely used in sarcoidosis. Digital versions as well as PDFs of various languages are available online (www.wasog.org).

SUMMARY

The FAS has good psychometric qualities for the diseases in which it has been examined, including sarcoidosis, and can be used in clinical practice. Healthcare workers can use the FAS to assess fatigue in the management, follow-up and clinical care programmes for their patients consistently across countries, as well as in clinical research.

摘要

目的综述

疲劳是许多患有慢性疾病的患者(包括结节病患者)所经历的一个问题。它对患者的生活质量(QoL)有很大的影响。因此,用有效的和可靠的方法来正确评估疲劳是很重要的。疲劳评估量表(FAS)是唯一一种经过验证的、用于分类结节病患者疲劳的自我报告工具。本综述的目的是检查 FAS 的心理测量特性以及它在哪些疾病和语言中得到了应用。还回顾了结节病患者的研究结果。

最近的发现

通过搜索电子文献数据库 Pubmed 来确定研究。使用的搜索词是:FAS 和疲劳。如果 FAS 用于评估疲劳,则将文章纳入综述。

结果

自推出以来,FAS 已在 26 种不同的疾病或病症中使用,包括中风、神经疾病、类风湿关节炎、特发性肺纤维化和结节病。它的可靠性和有效性已经被证明是良好的。已经确定了它的单维度性。到目前为止,FAS 有 20 种语言版本,在结节病中广泛使用。它的数字版本和各种语言的 PDF 版本都可以在网上(www.wasog.org)获得。

总结

FAS 在已检查的疾病(包括结节病)中具有良好的心理测量质量,可在临床实践中使用。医疗保健工作者可以使用 FAS 在管理、随访和临床护理方案中一致地评估患者的疲劳,以及在临床研究中。

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