Department of Public Health and Pediatrics, University of Torino, Torino, Italy.
Spinal Unit, A.O.U. Città della Salute e della Scienza Hospital of Torino, Torino, Italy.
PLoS One. 2020 Oct 15;15(10):e0240600. doi: 10.1371/journal.pone.0240600. eCollection 2020.
After a spinal cord injury (SCI), individuals must acquire their maximum level of independence before returning to their previous social and working conditions. The education provided during rehabilitation is one of the basic but complex aspects that influence the health perspectives of people with SCI. Gaining the perspective of SCI survivors experienced barriers and resources to enhance the education process may assist healthcare professionals in understanding this complex aspect of their practice. Through a qualitative descriptive analysis, this study aimed to identify the perceived barriers and facilitators of education provided during the rehabilitation of individuals with SCI.
A purposive sample of 22 adults with SCI and at least six months of home experience was recruited. Participants were assigned into four mini focus groups according to their level of independence. The focus groups were audio-recorded, transcribed verbatim, and analysed using a thematic analysis.
Three themes were identified: the readiness to education, the individual characteristics, and the environmental and social characteristics influencing education. Participants perceived education to be an ongoing process made up of consecutive phases, each of which had to be overcome before participants felt ready to reappraise their health and well-being. This process was affected by individual, environmental, and social factors.
Education is constantly provided by all members of the rehabilitation team. These must stress the relevance of the contents presented, increase SCI survivors' motivation to set achievable goals, and consider filling the gap that the patients perceive between rehabilitation centres and available community resources. The findings of this study promote the design of structured educational programmes, increasing knowledge, and improve the health perspective of SCI survivors, their families, and providers.
脊髓损伤(SCI)后,个人必须在恢复到以前的社会和工作条件之前获得最大程度的独立。康复期间提供的教育是影响 SCI 患者健康观的基本但复杂方面之一。了解 SCI 幸存者在康复过程中所面临的障碍和资源,可能有助于医疗保健专业人员理解实践中的这一复杂方面。通过定性描述性分析,本研究旨在确定 SCI 患者康复期间提供的教育中感知到的障碍和促进因素。
采用目的抽样法招募了 22 名至少有 6 个月家庭康复经验的成人 SCI 患者。参与者根据他们的独立程度分为四个小型焦点小组。对焦点小组进行录音、逐字转录,并使用主题分析进行分析。
确定了三个主题:教育准备、个体特征以及影响教育的环境和社会特征。参与者认为教育是一个由连续阶段组成的持续过程,每个阶段都必须克服,参与者才会感到有准备重新评估他们的健康和福祉。这个过程受到个人、环境和社会因素的影响。
教育是由康复团队的所有成员不断提供的。他们必须强调所呈现内容的相关性,提高 SCI 幸存者设定可实现目标的动机,并考虑填补患者认为康复中心和可用社区资源之间存在的差距。本研究的结果促进了结构化教育计划的设计,增加了知识,并改善了 SCI 幸存者、他们的家人和提供者的健康观。