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上消化道癌患者的信息需求:患者及其家属想了解的内容。

Patient information needs in upper gastrointestinal cancer: what patients and their families want to know.

作者信息

Otutaha Bacil, Srinivasa Sanket, Koea Jonathan

机构信息

Department of Surgery, North Shore Hospital, Auckland, New Zealand.

出版信息

ANZ J Surg. 2019 Jan;89(1-2):20-24. doi: 10.1111/ans.14565. Epub 2018 Jun 11.

DOI:10.1111/ans.14565
PMID:29893038
Abstract

BACKGROUND

The treatment of upper gastrointestinal cancer (UGIC) patients is complex. Patients are often elderly, comorbid as well as nutritionally depleted and treatment involves multimodality therapy incorporating chemotherapy, radiation therapy and surgery. The pre-treatment information requirements of UGIC patients are not clear but crucially important in ensuring they complete treatment successfully.

METHODS

A systematic review of the English language literature was performed to determine the specific information needs of patients with UGIC.

RESULTS

Following abstract review and comprehensive analysis six articles were included. UGIC patients nominated information regarding post-operative recovery, quality of life, expected survival, management of post-operative symptoms and coping strategies for insurance and financial issues, relationships and family as being most important to them. Patients' families nominated information on the effects of diagnosis on patient well-being over the ensuing months and detailed information on available support services as being most important. One-on-one consultations with senior medical staff were the preferred method of information transfer followed by web-based information services.

CONCLUSIONS

For effective treatment of UGIC patients, physicians and surgeons must address issues pertaining to quality of life, finance and relationships and may require specific training, or administrative support, in these areas.

摘要

背景

上消化道癌(UGIC)患者的治疗较为复杂。患者通常年事已高,合并多种疾病,营养状况不佳,治疗涉及化疗、放疗和手术等多模式疗法。UGIC患者治疗前的信息需求尚不清楚,但对于确保他们成功完成治疗至关重要。

方法

对英文文献进行系统综述,以确定UGIC患者的具体信息需求。

结果

经过摘要审查和综合分析,纳入了6篇文章。UGIC患者认为有关术后恢复、生活质量、预期生存期、术后症状管理以及保险和财务问题、人际关系和家庭的应对策略等信息对他们最为重要。患者家属认为关于诊断在接下来几个月对患者幸福感的影响以及现有支持服务的详细信息最为重要。与高级医务人员进行一对一咨询是首选的信息传递方式,其次是基于网络的信息服务。

结论

为有效治疗UGIC患者,医生和外科医生必须解决与生活质量、财务和人际关系相关的问题,并且可能需要在这些领域接受特定培训或获得行政支持。

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