Brain and Spinal Cord Injury Research Center, Neuroscience Institute, Tehran University of Medical Sciences, Tehran, Iran.
Dept. of Medical Surgical Nursing & Dean for International Affairs, Nursing and Midwifery School, Tehran University of Medical Sciences, Tehran, Iran.
Spinal Cord. 2020 Feb;58(2):174-184. doi: 10.1038/s41393-019-0348-3. Epub 2019 Sep 2.
This was a qualitative study using grounded theory method.
To explain the process of family-centered empowerment in a population of individuals with SCI living in Iran.
Brain and SCI Research Center, Social Welfare Center, and SCI Association of Tehran; Iran.
Participants were 19 persons with traumatic SCI, 13 family member caregivers, and 11 health care providers selected through purposeful sampling. Data were collected using face-to-face, semi-structured interviews, which were continued until data saturation. The interview data were methodically collected and analyzed using Strauss and Corbin's (1998) recommended method for grounded theory. Constant comparative analysis was simultaneously conducted through reviews of the interview statements, observations of behavior, interviewer field notes, and interviewer memos. The analysis was managed in MAXQDA software version 10.
The process of family-centered empowerment following SCI included five categories: (1) disruption in the existential integrity of the individual; (2) constructive life recovery; (3) inhibitors of family-centered empowerment; (4) facilitators of family-centered empowerment, and (5) back on track. Constructive life recovery was selected as the core variable using the grounded theory method. This core variable identified the strategies most frequently used by the participants to cope with the challenges of SCI-related impairment, disability, and overall life management.
Family-centered empowerment process in individuals with SCI living in Iran emerged from the data. The model includes early disruptions in the bio-psycho-social and vocational lives of individuals with SCI and their families, strategies for recovery post injury, inhibitors and facilitators of family-centered empowerment, the gradual return to work and daily activities, and the expected social roles for individuals with SCI.
这是一项采用扎根理论方法的定性研究。
在伊朗生活的 SCI 患者群体中，解释以家庭为中心的赋权过程。
脑与 SCI 研究中心、社会福利中心和德黑兰 SCI 协会；伊朗。
通过目的抽样选择了 19 名创伤性 SCI 患者、13 名家庭成员照顾者和 11 名医疗保健提供者作为参与者。使用面对面、半结构化访谈收集数据，访谈持续到数据饱和。使用 Strauss 和 Corbin（1998 年）推荐的扎根理论方法系统地收集和分析访谈数据。通过审查访谈陈述、观察行为、访谈者现场记录和访谈者备忘录，同时进行恒定性比较分析。分析在 MAXQDA 软件版本 10 中进行管理。
SCI 后的以家庭为中心的赋权过程包括五个类别：（1）个体存在完整性的破坏；（2）建设性的生活恢复；（3）以家庭为中心的赋权的抑制剂；（4）以家庭为中心的赋权的促进剂，和（5）重回正轨。使用扎根理论方法，选择建设性的生活恢复作为核心变量。该核心变量确定了参与者最常使用的策略，以应对与 SCI 相关的损伤、残疾和整体生活管理相关的挑战。
伊朗 SCI 患者的以家庭为中心的赋权过程从数据中显现出来。该模型包括 SCI 患者及其家庭在生物心理社会和职业生活早期的破坏、受伤后的恢复策略、以家庭为中心的赋权的抑制剂和促进剂、逐渐回归工作和日常活动，以及 SCI 患者的预期社会角色。
